in black and white

I will not be flashing my boob at you, no worries – except if I wanted to, it is my blog.  In any event, part of me being able to deal with this is being able to look at it.   After all, this is a disease that like it or not, goes to the core of our femininity as women.  This is what the incision adjacent to my armpit looks like.  In black and white.  It hurts however, in living color.

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love my neighbor? not today thank you very much.

So I had to spring the beasts from jail.  The veterinarian’s office helped me get them in order and out the door without pulling anything.  Walking home  s-l-o-w-l-y ( my left arm hardly has a full range of motion yet and well the bottle on the pain meds says “don’t drive” and no one seemed to be around when I needed to go pick them up) I had to go past one neighbor’s house I was hoping to get by unscathed. 

No such luck.

Out of nowhere like a bat out of hell came the damn furry piranha.  Yup, a Chihuahua from hell.

It made a bee-line for my beasts.  Up and under it went searching for soft underbelly to chomp on.  I am unsteady somewhat on my feet still and had to manage to move them away while screaming for the owner to get her lazy ass off the sofa and come get her pint-sized terrorist with fur.

My one beast got nipped but no skin was broken.  But the end result of my having to move so fast is my surgical site is throbbing.    Next time I will let my beasts have a Mexican delicacy. Screw that.

I just checked and no, I did not thankfully tear anything – just moved too fast.  But damn it all? What is up with these people? Their damn dogs go after people all of the time (they have more than one Chihuahua), go after dogs all of the time and they never seem to give a crap.

Well I am pissed now.  They better keep their little rodents away from my beasts and ankles from now on.  Next time I will call the animal warden and have them cited.

The vet bill was HUGE.  And that is a nonreimbursable breast cancer expense.  But my beasts were safe and happy as I got through surgery and the first few days.

I am exhausted right now, but I have some work to do.   Regular work.  I am so tired but I have to do some of it.

P.S.? Don’t ever buy me a Chihuahua as a gift.    They are a menace.

 

 

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monday morning

Morning sports fans!  I have my medical oncologist appointment lined up and still have one art pit that smells more than the other.   Incisions look good but everything still kinda pinches and in the background is a dull sort of pain.  But the pain is better, so I have cut the pain meds back some more.  But in the positive column, I no longer pee blue or green.

However, on this sunny day I have a magical hospital bill for the MRI they needed on me pre-surgery.  Over $250 and I was not supposed to have any overage so someone did not code correctly.  Did you know an MRI costs at least $9,425.00 in PA?  And if I was on welfare not health insurance I probably wouldn’t have this magical mystery MRI bill.  So my hospital system in spite of my asking day of MRI was there any co-payment, etc saying (the caps are theirs incidentally):

Your Insurance Company Has Paid Their Portion Of This Bill. Prompt Payment Of The Remaining Balance is Appreciated.

 Oh, o.k. so first you tell me when I ask day of that I will owe nothing  and then repeat it when I call after to check again and I have had MRIs before with and without dye and there have never been any overages – and in the same hospital system. Add this to the small bill on something else I should not have gotten that I received around May 20th and called about.  And oh yes I called about this one too.  You can’t speak to a live person in their “helpful” prompt ridden auto lady phone system for “customer service”, you have to leave a message.  They never call you back, so I also called the financial wizard in my regular doctor/gynaecology practice.  She’s like Glinda the Good Witch with making these situations disappear, so hopefully everyone figures out their coding.  If they don’t I might gnaw on their ankles a while.

But healthcare costs are crazy, aren’t they?

I am still tired.  I am tired of tired.  I slept only so-so last night. 

My neighbor I told you about still can’t keep anything solid down and starts more chemo today.  Then they send her home with some kind of “fanny pack”.  I guess that is like chemo to go.  I am worried about her.  Especially when her friend told me that she had had nausea and other symptoms for months.  I guess I am a big baby but I would have gone ASAP to the doctor then, but it’s not for me to judge.  But I have to tell you, having someone deal with in essence terminal in close proximity when I am dealing with something highly curable gives me definite moments I gotta tell you.  I almost feel guilty for my ability to heal if that makes sense.

 What else? Oh I spring the critters from the vet today.  That will be another bill from hell.

However, in spite of these irritations, I remain positive.  Life is worth living and fighting for.  Sorry I sound like a Hallmark card.  And I sound feisty but am not operating on all cylinders yet, so please don’t expect me to, ok?  My mind is normal, my body not yet.

Go forth and enjoy the day!  And try not to vomit when you hear the news that Rick Santorum, that self -focused preachy freak, has announced he wants to run for president – just say NO.  We don’t need freaks like Santorum in American politics…and I remember where he was the last time on women’s issues.  I am not a women’s libber by any stretch of the imagination, but having breast cancer has definitely raised my awareness as to the protections women need.

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sunday, sunday

It’s a quiet and cloudy Sunday.  I just woke up again, and from downstairs drifting up I can hear the sounds of Sunday.   Normalcy and  it sounds so good.

When I think of Sundays, I often think of my father for some reason.  When I think of my father and remember him, I think of him smiling and the way his eyes used to light up when my mother, sister or I entered the room.  They are random memories like snippets in time and space and they come into my mind unbidden.

But I have to ask -is it the breast cancer, or is it my subconscious that also brings forward  other snippets, unwanted snippets of my past with my ex to regurgitate one last time and release into oblivion?  Does the breast cancer diagnosis make me deal with the other ghosts in the machine once and for all?  I think it does.

For example, I never truly admitted to myself until I admitted it to my sweet man last night, the occasional moments that lurk thanks to the thoughtful (being sarcastic here) exit of my ex.  After all, what was done to me was abandonment – when you commit your life to someone and in the end they can’t even commit to a cell phone plan let alone another human being, it does leave some marks for a while.  And no, I am not angry or afraid; it just is what it is, pure and simple.   

The one who does love me tells me it’s an old cliché, but time and distance make it better and I do believe him (and it is true).    And face it, from the day we are born, we all come with a past – we just have to deal with it.    And even after we have dealt with it, once in a while in life there are occasional land mines.  I do my best to deal with them positively at this point and then to let them go.  Writing helps with that.

Last night was a great night to chatter, hang out, and to watch two movies that were on – Julie & Julia and It’s Complicated.  Normal things.  Sigh.  Normal and low key is good.  Terrific actually.  I am a nester by nature, so this to me is heaven.

So I guess we can say dealing with a disease like breast cancer does indeed make you more introspective.  I suppose if you want to heal, move on, and live… you have to deal with things – including old negatives and haunts beneath the surface.   In a way it is very Zen to be able to deal with these things and to let them go; to release them and look forward.  It’s like visualizing a balloon and letting its string slip from your fingers and gently float upward into the sky.  Catch and release.

As the day is cool, through the open windows dancing on the breeze is a cacophony of sound – birds, dogs, and the symphony of riding mowers.  Part of me wonders if they can be run like synchronized swimmers.  Sorry, just had this funny mental visual of men on lawn after lawn after lawn on their lawn tractors going through the lawn dance.

I am still amazingly tired and when my body says sleep, I do.  I am moving over to mostly regular Tylenol for the remaining pain, prescription pain meds are something that just bother me – to be taken when needed and properly disposed of when not.   I have seen too many pill poppers in my lifetime and apparently it’s a really easy and slippery slope to go down.

It’s Sunday, people.  Yay, I am into the new week.   I have to call the nutritionist that comes as part of my cancer treatment.  I want to get the list of foods I should be eating when I start radiation since I believe I have to stop supplements at that point until the course of radiation is done.  I think the rule of thumb is I can only have what occurs naturally in foods I eat.  I heard wheat grass for example is very good.   I see the surgeon mid week to have a peek and to chart out the balance of my treatment.   And the surgery co-pay is behind me (that was a bitter pill).

Speaking of the surgery, I keep having random flashbacks of Wednesday.  Like when I went to be admitted.  I went up to the calendar and this man, the gatekeeper, gave me a buzzer like you get in restaurants – you know the spin on the “take a number” in the deli line.  Like I was ordering sliced ham and cheese.  When I reached my turn the woman checking me in was very nice.  She asked if I was employed and I said yes.  Then she asked for the address, etc.  So I said to her that I was happy to give her all the information she wanted, but when it came to my benefits I was self-pay.  That blew her away.  I was thinking to myself, if she thinks it blows her away….and work still continues to be a worry. 

Men in the workplace have all sorts of allowances made for them, but not women.  And that does bother me even if I am technically a protected class at this point.  But I can’t worry about that, I have to concentrate on healing and getting stronger again.  One day at a time, one step at a time.  If anything happens, I am a big girl and I know how to push back.  I will not take any crap at this point in my life.

Other random thoughts?  My left breast is turning an interesting cornucopia of bruising colors I must say.  Yuck. But once again, I remind myself that it could be worse and the top of that scale is the lump could still be inside me lumping away.

It’s weird to be in the recuperative fog hearing life go on around you.  But the very noises of ordinary life are very calming and healing. 

One day at a time, one step at a time.  I can do this.  Yes, truly, I think I can….the funny thing is I think I am actually doing it.  Wow.  How about that?

 

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6 a.m. on saturday is not for lawn mowers…

Ahh neighbors…nice people…but 6 a.m. was not the ideal time to have to wake up to the dulcet tones of a LAWN MOWER.    Seriously, not to be rude, but how rude is that?  People are just clueless.

I am a little less tired than yesterday, but definitely far from 100%.

It’s hard not being able to do your normal routine.  And the other thing is this: I can put deodorant under one arm, but not on the other because that is where the lump and sentinel node were removed, so I have one smelly arm pit and well, I hate smelling.   I might turn into a little old Italian lady and throw a mint leaf under the other arm LOL.

But oh hell, the lump is out, so how awesome is that?

Nap time.

 

 

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it’s all good…

YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

My surgeon called…..don’t you want to know????

Pathology is back…..drumroll please….

Lymph nodes are NEGATIVE and margins CLEAN and CLEAR.

The little bastard was 3.2 cm or a little over an inch and a quarter….

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nothing like a good nap and other updates…

So while the rest of the world was learning that the cheating skunk known as John Edwards was getting his six-count indictment I slept.  A really good solid sleep for another four hours.   I have always loved naps and while I still hurt I do feel  a little better this afternoon.

I am glad John Edwards is getting his.  I always thought he was a phony baloney, and well, what he did to his incredibly brave wife Elizabeth Edwards was criminal behavior in and of itself.  

Elizabeth Edwards fought her breast cancer with grace and style and was open about it, which trust me is not the easiest thing to do.  I now know that, even if talking about it helps.  But Elizabeth Edwards dignity and positive outlook now helps women like me.  And trust me, you get this diagnosis, you start to live with it, you appreciate the women who came before you who dealt with it in an open and positive manner.

So also this afternoon, someone from General Motors reached out to me about my issue with that Chevy woman I wrote about the other day.  Only this woman form the corporate offices in New York was more my kind of woman.  She sent me an e-mail:

I work for General Motors on the Northeast Region Communications team and manage our Chevrolet grassroots efforts in Pennsylvania.  I read your blog and wanted to reach out to you directly.

I am very sorry that you feel that strongly about Chevrolet.

We do our best to partner with as many community organizations as possible and in the best way that we can. We partnered with LBBC for the Yoga on the Steps event and are open to partnerships in future.  

Please feel free to reach out to me if you’d like to discuss this further or have any questions.

Hope you get better soon.

 So I called her up – you know me – not shy about these things.  We had a lovely conversation and she apologized for what had upset me previously.  She was very nice and now I am left feeling good about the whole situation, versus how I previously felt which was super irritated.   I hope that GM appreciates the job this woman does, because she was honest, forthright, and just pleasant.   So Chevy? Apology accepted and we will chalk up your other person as to having had a very bad day.

In a couple of hours, it’s First Friday – I won’t be there for the car parade, but I hope a lot of people go and support First Friday Main Line and Living Beyond Breast Cancer which is the charity within the charity this month.

A friend of mine today described this as a “Maine Day”  and it is.  The weather is spectacular and it’s a great day to be alive.

I choose love, joy and freedom, open my heart and allow wonderful things to flow into my life.

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sleep is good….

Finally I slept.  Only six hours straight before I woke up, but I really slept – which is more than I have been doing.  Between work stress and breast cancer stress and life stress,  continual good sleep has been a challenge the past year.

My incisions look good and that sweet man of mine says the pink is a healthy pink. They still hurt, and so I am ignoring my left arm – which since I am left-handed is indeed a challenge.  It’s amazing the way my left side hurts. (o.k. yes, yes I had surgery what did I expect? Don’t know, never have had much of anything done and given the way the left boob feels I still can’t understand elective boob surgery for purely cosmetic purposes)

Me relaxing and resting is the hardest thing right now.  I am not programmed to sit still and I know I have to.  I know rest = healing.

My head seems in a better place today.  Yesterday I was just an occasionally weepy mess.  But as you all keep telling me – one day at a time, one step in front of the other.  And if the job worries turn into something real, I will simply have to deal with them. 

All in all I am a lucky girl, I have all of you. 

My soul is tall.  I am bigger than this circumstance. 

 

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….wow this hurts

Ok so I am not Wonder Woman, and no worries about me pushing it even if I am honestly worried about my job (catching up on work) and a million other things.  I feel like I got hit by a truck.   

 Honestly, zippy I ain’t. 

I hurt and I just can’t move.  I am awake and then I am asleep, or some reasonable facsimile thereof.  I am one of those people who can’t truly relax with pain meds.

So I am taking it easy – and if you don’t hear from me or I don’t answer the phone, please don’t take it personally.   This has taken a lot out of me and I really want to heal properly.

So I have looked in the mirror at it all.  Not so bad and my surgeon has the neatest little stitches in me.  Mind you they hurt.  No I am not moving around so much, everything just freaking hurts.  But my temp is normal and the swelling, etc does not look out of hand.  I hate feeling crappy I have to tell you.  And I am so tired.

And as we send up prayers and positive thoughts for me and the pathology and what lies ahead, can you remember a neighbor of mine in your prayers?  I think I mentioned her before.  She is recently diagnosed with stage 4 colon/rectal cancer and has lesions on her liver.

This has me a bit undone.  She is the loveliest lady and I know she has severe nausea after the intensive in-patient chemo she has had.  Any tips on that, please post so I can pass along when I am feeling better.

There is an undeniable fragility of life, so we need to get the best and most positive out if it, if that makes any sense.  I don’t take anything for granted any more – not that I think I really did to begin with.

Anyway, I hope I am not being a big bummer here, this is just what is on my mind this evening. A jumbled mind jungle…I know it is normal to feel out of sorts, I just don’t like it.   And I hate not feeling well.

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unveiling it all…

Well  I made it through the night.  I am one of those people who can’t completely relax on pain meds, but I definitely need them.  Everything hurts.  I slept sort of but I know I need more sleep.  It’s amazing how much calmer I feel this morning with the surgery out of the way.

This morning my sweet man helped me unravel the great mystery of the bandages.  And they were chafing. 

Unwrapping me was an incredibly intimate and somewhat indescribable thing.  His hands are strong and gentle and oddly enough, sharing that with someone made it less of something to fear looking at and just another step in this process.  I would tell any woman going through this to NOT do it by themselves.  Do this with someone, and do look in the mirror.  That wasn’t as bad as I thought it would be.  Truly.  The sooner we face it, the better it is.  I know some women are immediately zero to sixty in the “oh my god I am not perfect anymore” of it all.  Well I never was perfect, and you know what?  After this experience, I am surprisingly o.k. with it, so I feel sorry for them.

The big news is yes the nipple is still there.  The  stitches are incredibly neat and tidy and knock on wood everything looks good and not messed up swollen.  I had a giggle because as I was unwrapped for the great unveiling there were the initials of my surgeon on my boob.  I had forgotten she did that and why.  I remember saying when she did it that it was a new spin on sign my cast.  Did I tell you my surgeon had the perfect set of a triple strand of pearls on yesterday with her surgical gear? And those Dansko leopard print patent clogs I love?   My surgeon is a cool woman, and like my ob/gyn always has great shoes.  (Come on now… great shoes are important LOL)

I don’t have a fever knock on wood (yep gonna get bruised knuckles today LOL) but I am wiped out.  I don’t think I have ever been so tired.  People keep calling and e-mailing and I get to who I can, and who I can’t get to need to just understand that I am beat.  I have to go to ground to heal.

Back to the breast.  It looks a little deflated but I am so happy that shit is out of my body.  Now I just hope the lymph nodes and margins are truly clean…come on pathology!

I am so blessed I have such a great support system.  Thank you all for being my rocks.

I think the word of the day is serene.  I feel calm…

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