….wow this hurts

Ok so I am not Wonder Woman, and no worries about me pushing it even if I am honestly worried about my job (catching up on work) and a million other things.  I feel like I got hit by a truck.   

 Honestly, zippy I ain’t. 

I hurt and I just can’t move.  I am awake and then I am asleep, or some reasonable facsimile thereof.  I am one of those people who can’t truly relax with pain meds.

So I am taking it easy – and if you don’t hear from me or I don’t answer the phone, please don’t take it personally.   This has taken a lot out of me and I really want to heal properly.

So I have looked in the mirror at it all.  Not so bad and my surgeon has the neatest little stitches in me.  Mind you they hurt.  No I am not moving around so much, everything just freaking hurts.  But my temp is normal and the swelling, etc does not look out of hand.  I hate feeling crappy I have to tell you.  And I am so tired.

And as we send up prayers and positive thoughts for me and the pathology and what lies ahead, can you remember a neighbor of mine in your prayers?  I think I mentioned her before.  She is recently diagnosed with stage 4 colon/rectal cancer and has lesions on her liver.

This has me a bit undone.  She is the loveliest lady and I know she has severe nausea after the intensive in-patient chemo she has had.  Any tips on that, please post so I can pass along when I am feeling better.

There is an undeniable fragility of life, so we need to get the best and most positive out if it, if that makes any sense.  I don’t take anything for granted any more – not that I think I really did to begin with.

Anyway, I hope I am not being a big bummer here, this is just what is on my mind this evening. A jumbled mind jungle…I know it is normal to feel out of sorts, I just don’t like it.   And I hate not feeling well.

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unveiling it all…

Well  I made it through the night.  I am one of those people who can’t completely relax on pain meds, but I definitely need them.  Everything hurts.  I slept sort of but I know I need more sleep.  It’s amazing how much calmer I feel this morning with the surgery out of the way.

This morning my sweet man helped me unravel the great mystery of the bandages.  And they were chafing. 

Unwrapping me was an incredibly intimate and somewhat indescribable thing.  His hands are strong and gentle and oddly enough, sharing that with someone made it less of something to fear looking at and just another step in this process.  I would tell any woman going through this to NOT do it by themselves.  Do this with someone, and do look in the mirror.  That wasn’t as bad as I thought it would be.  Truly.  The sooner we face it, the better it is.  I know some women are immediately zero to sixty in the “oh my god I am not perfect anymore” of it all.  Well I never was perfect, and you know what?  After this experience, I am surprisingly o.k. with it, so I feel sorry for them.

The big news is yes the nipple is still there.  The  stitches are incredibly neat and tidy and knock on wood everything looks good and not messed up swollen.  I had a giggle because as I was unwrapped for the great unveiling there were the initials of my surgeon on my boob.  I had forgotten she did that and why.  I remember saying when she did it that it was a new spin on sign my cast.  Did I tell you my surgeon had the perfect set of a triple strand of pearls on yesterday with her surgical gear? And those Dansko leopard print patent clogs I love?   My surgeon is a cool woman, and like my ob/gyn always has great shoes.  (Come on now… great shoes are important LOL)

I don’t have a fever knock on wood (yep gonna get bruised knuckles today LOL) but I am wiped out.  I don’t think I have ever been so tired.  People keep calling and e-mailing and I get to who I can, and who I can’t get to need to just understand that I am beat.  I have to go to ground to heal.

Back to the breast.  It looks a little deflated but I am so happy that shit is out of my body.  Now I just hope the lymph nodes and margins are truly clean…come on pathology!

I am so blessed I have such a great support system.  Thank you all for being my rocks.

I think the word of the day is serene.  I feel calm…

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out, out damn lump

Greetings from the land of pain management, this is Julie McCoy your cruise director. (Savor the moments people, because rarely am I so mellow.) 

 The news of the Rialto?

C’est comme ça: it’s out and the margins were hopefully clean and as foggy as I am, there is no road map under my arm pit, so the lymph nodes I believe are doing a happy dance. My surgeon left me a message when I was napping and said the outcome of the margins won’t be  truly definitive until the final word from pathology but we’ll just be thinking positively, o.k.?  She did say the nodes looked good, but added the pathology disclaimer…. The funny thing is I remember someone between recovery and the room they put me in saying the margins looked good.

The hospital was fantastic.  The getting up at 4:30 a.m. pretty much sucked, but I checked in at 6:00 a.m., they took me somewhere around 7 or 7:30 a.m. and an hour later? Voila!  Sayonara lump!

My blood pressure did kind of go on the high side when I hit the hospital, but I feel so different now – LOL the pain pill helps (which means this might not be one of my most articulate writing ventures).  My sweet man, my mother, and my Jewish mother kept me company.  And yes, I did go to church yesterday for a little check in, and one of my mumma’s sets of rosary beads came to the hospital and went home with my mother.

I have to be honest, after they took me into the day surgery staging place and stuck that mask on me, I remember nada.  The next thing I remember is waking up in recovery, then they moved me to a room for me to wake up before home. And snippets of conversation here and there.

One thing that sucks is the pain.  I have a very high pain threshold, got that from my father, and this hurts like a mother f-er.  Now it’s a la-la land kind of hurt…but it’s an ouch. (As was that co-pay from hell)  I think I still have my nipple.  Truthfully, I forgot to ask – so I won’t know until the bandages come off.

 More work ahead, but it’s out!!! It’s out, it’s out, it’s out!

Now let’s talk about Rite Aid.  After all, with them, it’s personal, right?  So I had to go in personally to get my meds.  They need to buy a clue when they leave someone who has just had surgery, said they just had surgery standing there at a counter  for like 10 minutes when there were 3 people free. They got super-duper crabby me on that since part of pain management is not being on my feet forever. I am rather peeved about that, and it was undoubtedly because the regular pharmacist wasn’t on today.

But seriously?  When I said to them not to be a bitch but I am just out of surgery and can’t be on my feet forever and am in pain, they did not exactly hop to.  Then I said it again – hello? I just had breast cancer surgery do you MIND?  And then it was another 20 minutes or so.  And while I was waiting I went up to the front to speak to the store manager.  And he says to me he can give me a number to call.  I looked at him like he had six heads.  I told him this was his store and that was his damned job. I mean, seriously, what wasn’t they did not get about the situation?  Grrr.

Ahh and something else I have been meaning to write about: bullshit Chevrolet. What up with Chevy who doesn’t think a community partner with LBBC (Living Beyond Breast Cancer) is important enough to deal with?  Chevy is some kind of community partner for them.  But is this partnership altruistic on the part of Chevrolet or self-serving?

I have to ask at this point, is  Chevy just using LBBC?

First Friday is June 3rd. The local charity for June is LBBC, and  this event  has a CAR parade in it.  First Friday  contacted Chevy to see if they would like to help some small way due to LBBC’s participation. Chevy gave short shrift. SHAME ON CHEVY. Heartbeat of America my ass.  As a matter of fact, the Chevy rep who spoke to the First Friday volunteer basically said something along the lines of what would they get out of it.

Seriously?  It’s a CAR parade and a charity they sponsor is involved.  And oh yes, other car manufacturers who have been involved in years past have actually sold cars because of this exposure.  I do the publicity for First Friday and normally the photography and when I got my diagnosis I asked specifically if LBBC could be involved even if I would be under house arrest so to speak and not there.    So as a woman with breast cancer, I think Chevy has a lot of nerve.  I am extremely personally offended as a matter of fact.  Maybe I am being silly, but it’s how I feel. And oh yes, I left two comments on their Chevrolet Teams Up with Living Beyond Breast Cancer page and both were deleted – they were respectful, albeit questioning, so I think it’s pretty clear that the only heartbeat Chevy is concerned with is its own.

So Chevy? Part of my pain management today is to tell the world I think you are a bunch of disingenuous turds. 

I am a foggy brain and a half.  But I am through the surgery and one step closer to getting through this.

I am going to bed now, people.   Je suis fatiguée

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calm…

O.k. people, just because you do not hear from me for a couple of days, it doesn’t mean I am on the edge of a cliff somewhere!  It means I am taking a break – same as I would do if I did NOT have breast cancer.

Went away for Memorial Day to a lake that was a little slice of heaven and left reality and breast cancer outside the gates.  Some very special friends of that very special man invited us away and I had a blast.  Relaxed, shot a million photos, enjoyed the happy sounds of children playing and so on.  Y’all should try it some time. 

We got back yesterday on Memorial Day and  we were back in enough time to go to my friend’s annual BBQ party.  It was awesome and the food was yummy !

So here I am in my good place and I finally had time this weekend to catch up with a couple of friends I had not connected with in a while, so it’s all good.

I’m good.  Yes I have my moments, but hello?  We’re all human beings on this bus of life, capice?  After all what am I supposed to do?  Stop living? No bloody likely.

We must all remain positive.  I am a realist, but I will be positive.  I have a cancer with a high cure rate so, dang it, that’s what I am ordering.  You all know I am spoiled and tenacious, so that is what I want.  And if you love me that is what you want for me too.   And stop the crap with the plastic surgeons.   If I need to go there, I will let you know.  These are my boobs, not yours.  Right now we’re all good as ourselves.

You must do the things you think you cannot do.
– Eleanor Roosevelt

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juggling

One of the things that you never really know what it is like until you are in it, is trying to juggle your 9 to 5 life with a breast cancer diagnosis.

When you get breast cancer you flip into a mode of appointments, appointments, and more appointments.  And unless you don’t have to work to sustain yourself, it means matching all those appointments with work.

Like many other breast cancer babes, I work.  I am a professional woman with real responsibilities.  I work in a man’s world, and that is a challenge in and of itself.

Learning the juggling  of getting the appointments in along with getting surgery and post surgery treatment scheduled is like having another full-time job.   Yet what choice do I have?  I have to pay my bills.

 I have really pushed the envelope of managed healthcare getting things scheduled in lumps to cause as little disruption as possible.  And at the end of some days, I still can’t escape the feeling of guilt that is completely wasted.  After all, I am one of those people with a work ethic.  I work hard, I don’t abuse the system.  And prior to this, I wasn’t someone who was either sick or took much time off.

But now I have to deal with that.  I have breast cancer, but I don’t feel sick, I don’t look sick, yet sometimes I feel like I have to look over my shoulder and worry when scheduling appointments that in essence will ensure I stay a healthy woman for years to come.  And why should I feel guilty? It’s not like I set out to have breast cancer.  It’s not like I am faking breast cancer.  Women who have children seem to be able to get time off to (a) have the babies and (b) deal with kid stuff.  Don’t deny it, it’s true. 

I used to work for a rather large corporation and women with kids did have preferential treatment, and by comparison even their corporate sponsored healthcare was a better value if you had kids.  When you were the one without kids you got last choice a lot of the time for holiday time off.  It was a penalty that was subtle in its unfairness and discrimination.  If you couldn’t have kids some of them looked at you like you were deficient.  We used to refer to it as spawn penalty.  It drove me batty, because I love kids, I just couldn’t have them, so why punish me? Why brand me with the scarlet “C” for childless?

So…. when women get sick in the workplace, as modern as society has become, do we really have a comfort level it will be all o.k.?  As of today I am not sure.  I just have a slightly uncomfortable feeling and I hope I am wrong.

I have to tell you I am really nervous about upcoming time out of the office.  I am worried.  What if something happens to my job?  After all I have heard and read about women who have gotten sick and come back to find the rug pulled out from under them.  Do men who get sick ever worry about these things?

Women have rights, so why do I feel we as women have to fight for them even when we say…get a breast cancer diagnosis?  Do they do this to men with say, prostate cancer?

But seriously?  All this juggling is nerve bending some days.  I am not trying to borrow trouble, but this is reality for many women: juggling, multi-tasking, worrying.

O.K. back to watching trash t.v.  Time to give the brain a rest – after all I am supposed to be reducing stress. But how the hell am I supposed to be the picture of zen 24/7 when there is so much to do and  so much to think about?  I want to be Wonder Woman but I think my golden lasso is at the dry cleaners today…

Sorry my peeps, it’s just been one of those days.

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is life a giant 12-step program?

As we reach a certain age, we can’t help but know (or have known) a few people in recovery, better know as AA.  That being said, I have wondered for some time if life is not just a giant 12-step program after all?

Does one stage in life prepare us for our next?  If we approach life as a giant 12-step program, is it easier to take it as it comes?  I am not in recovery, I am not in any 12-step program, except now I am wondering if in approaching life’s challenges, we all should consider it?

Call it food for thought, but I think the serenity prayer is multi-purpose.   I am not going super religious here, just thinking about stuff.  I looked it up and here it is:

God grant me the serenity to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right if I surrender to His Will;
That I may be reasonably happy in this life and supremely happy with Him Forever in the next.

Amen.

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a couple of clouds on a sunny day

Today is a weird one.  First there was the call from my surgeon’s office that they had not yet received my written surgery clearance from my primary care’s office.    So I called my primary care and said I don’t want to whine too loudly but if they want me all nice and calm for surgery then….end result?  My surgeon should have that today but I will follow-up in a couple of hours.

Next comes the not so happy part – my neighbor who is a wonderful woman is in the hospital.  I realized that all I had seen the past few days was this friend of hers who moved away a few years ago. Not her.

So I asked this friend of neighbor where the neighbor was.  “She’s in the hospital” she says.

“WHY????” I asked

She has colorectal cancer that has metastasized and is getting in-patient chemo.” she says

Wow. Just wow. Where do I go in my head with this?  This neighbor is an absolute darling of a woman and that is just so unfair.

Of course I immediately think about the fact she is divorced, older, no kids, a brother who has some special needs, etc.  So I tell her friend a place to stop locally before she leaves town to pick up a pamphlet on driving services, etc – with chemo she will need it and as I enter into my own quest to rid myself of breast cancer, I know that I won’t be able to help the way I would if I could.

So her friend says to me “well can you talk to her brother about this?”

I looked at her and said “No I am sorry I can’t. Not right now.”

She looks at me  quasi-incredulously and asks “Why?”

I am thinking in my head “REALLY???”.   But I did not say that.  I told her I have breast cancer and have unfortunately my own things to deal with right now.

Lordy you would think I am the world’s most selfish person.  But I can’t.  I can’t take on anything new, especially that saps any kind of emotional energy that I need to store to heal.  I feel awful, but I really had to bite my tongue and ask her why she could not do this for her friend.

So I did call the non-profit to ask me to send their pamphlets to slide under my neighbor’s door.

I feel shitty that this is all I can do right now and I am very worried for her.  But I just can’t go there.  I can’t.  This news has hit me oddly enough as it is.  I really felt like someone had punched me in the stomach.  Is this how it is going to be from now on?  Every time in the near term I hear someone is sick or dying? Or has died?

Had that today too.  The hearing about someone dying.  Someone else I know who is an absolute love unexpectedly lost their sister last night. 

The fragility of life is very real, isn’t it? 

But in the positive column today, a woman I know whom I think is simply amazing called.  Another mutual friend told her what I was entering into and she called to say hello.  She also gave me more resources that I can tap into as needed.  I really needed to hear her calm and lovely voice this morning. 

So friends, that has been my morning.  A bit of a roller coaster emotionally.  But I am o.k.

God, you listening? Please help these other people in my world who are going through things?  Thanks, and thank you for helping me to keep my faith. 

I am really glad I am writing about this stuff.  It helps. 

It’s a sunny day, people.  Go outside and appreciate a little Mother Nature today.

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an irish blessing

Today they aren’t my words…they are words as old as the hills.  If any of you out there are having a bad day, may these words be a positive affirmation:

May God give you…
For every storm, a rainbow,
For every tear, a smile,
For every care, a promise,
And a blessing in each trial.
For every problem life sends,
A faithful friend to share,
For every sigh, a sweet song,
And an answer for each prayer.
– Irish Blessing

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the human element in breast cancer

Today was a crazy, quasi-rainy Monday.  A trip back to my primary care for another blood pressure check – and well, my blood pressure is a little high so I am on a beta blocker thingy at least for the short to near term.  (Of course every additional appointment close to surgery hypes me up more, I hope they take that into consideration – it’s not that I don’t like all entrusted with my care, because honestly I do, but nevertheless….)

After work when I was taking a walk I thought about some of the random people I have come in contact with since I was diagnosed.  Like the woman who felt the need to tell me her sister died of pancreatic cancer after being on tamoxifen.  Truly, I did not need to hear that. And besides, how does she know it was the tamoxifen? 

I ran into my new friend whom I made friends with when fate introduced us at the end of my driveway.  She is a remarkable woman and mother and I just think she is so nice.  I think she hits a year post surgery in a few weeks.  I like talking to her because she is just real and nice.  She gave me a tip when I hit the radiation stage – apparently corn starch becomes a girl’s best friend during radiation – it helps keep the area dry.  She told me something really cool – apply it with one of those large make-up brushes.  (Now there’s a tip I can use because I am hell with powder LOL.) She also told me to get myself some soft stretchy cotton camisoles.  I don’t know where to look, so those of you inclined towards tracking those down, let me know where you find some.

Then this evening as I was chilling out watching Antiques Roadshow, one of my sister’s friends called to check in.  They offered me some additional resources for keeping my knowledge base solid and options if I need them down the road.  I thought it was wonderful they did that for me, and also because they just listened.  Yes I know, I am sort of a one trick pony until I get through this, but the listening and encouragement are invaluable.  My sister has some truly amazing friends and I am blessed they like me enough to care. 

Because face it, I can be damn difficult.

But I guess being difficult is part of the human element, is it not?  Sometimes it’s the very edge in us that gets us through…or something like that.

Goodnight little monsters. Today was a pretty good day all in all.

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these are the days…

Woke up with Natalie Merchant in my head – “These are The Days”.  Love, love, love this song.

It’s Sunday already. The days fly by. 

Yesterday was one of those days again you just want to bottle – Good friends sunshine, grilling outside, firecrackers and then s’mores by the fire accompanied by the happy sounds of children laughing and playing.  It doesn’t get any better than that. 

And you see, those are the things that every woman should hang onto because when this disease wants to take you on a magical mystery tour, remember theses moments and it is amazing how good they are.

Happy Sunday people.  Go out and do something with people you care about.  Oh and incidentally, yesterday I had a great chat with the new priest in town who has taken over for one who retired.  Yes, me the slightly irreverent one still needs her Irish Insurance.  Apparently God and Father are o.k. with that, so it’s all good.

And people, it is…all good.  Breathe. And go read my second Patch scribble.  The first one is creeping up the charts of most read popularity…so somewhere, someone is reading…

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