do you tamoxifen? (then read this post)

UPDATE: My CVS pharmacist just called me and she told me that there is a shortage in the Teva version of Tamoxifen, especially in the 30 day count bottles, which is what we get.  So my pharmacist bought a larger count bottle so myself and other women who use this particular store can get the generic that we can tolerate.  I am looking to poke around at Teva about this shortly.

Here is the note I am writing to the media relations people at Teva to shoot up the food chain:

Dear Teva:
I am a breast cancer survivor from Pennsylvania on Tamoxifen.  I have been on it for almost a year now (Teva’s generic), until my prescription was refilled 3 + weeks ago.  My CVS pharmacy then switched me to Mylan’s generic and the drug’s side effects ramped up – I had increased hot flashes, night sweats, moodiness,and sleep interruption. I also itch and don’t have any bug bites or poison ivy.
The sleep has been the worst.  For three weeks I have struggled to get more than 3 hours of sleep at a shot.  As you know, that is a very real side effect of women on Tamoxifen.  Sleep on your generic is about 6 hours at a time before I pop awake, which makes a huge difference in getting through the day and functioning.
I finally sat down to see what had changed in my life in 3 weeks and the only thing was a switch in generic of Tamoxifen from Teva to Mylan.  I put it out there on breast cancer pages I belong to on Facebook as well as my breast cancer blog, and discovered other women also experiencing the same thing within the same time frame.  All had been switched from Teva to Mylan.
So I called my doctors and my pharmacy.  What I was told by my CVS pharmacist this morning is that there is a shortage of the Teva generic, especially in the 30 day count which is what most women are prescribed.
I would like to know (a) what is causing this shortage and (b) how you plan to rectify the shortage issue.  I have read in the news recently of shortages in other cancer drugs across the board, but nothing with Tamoxifen.
Please…you have absolutely no idea what it is like to experience any of the side effects of Tamoxifen, and since I can tolerate your generic and my insurance will only pay for generic, please let me know when and how this problem will be addressed.  If there is a better supply, say with your Canadian/European arm, can the drugs come in from Canada?Europe to US patients and their pharmacies?
Thank you

Previously: As all my readers know, I have worked very hard post breast cancer to reduce stress, change my life, be more healthy, and so on.

One of the hardest things to deal with since my diagnosis is the Tamoxifen.  Now on it 3/4 of a year, my body was finally adjusting and I was learning to sleep again, and the hot flashes and night sweats weren’t so obnoxious.

Until about three weeks ago when CVS switched me from the Teva generic of Tamoxifen to the Mylan generic of Tamoxifen.  Many will argue that generics are generics, but ask any chemist or person with a background in pharmacology and they will tell you different generic manufacturers use different binders and other manufacturing agents.  They are never exactly identical.

I was so enjoying being able to sleep again that this has been a jarring experience and after only 3 1/2 hours last night and MORE night sweats and hot flashes I realized what had changed in the last 3 weeks was the generic Tamoxifen I was taking.  You see, before my prescription was at Rite Aid and they filled it with Teva’s generic.   When I switched to CVS because it was more conveniently located, the CVS filled it with Mylan’s generic. And I have been itchy.  I am never itchy. And I do not have poison ivy. Or bug bites.

I would like to know if any of the rest of you out there have had a problem when switched to Mylan’s generic formula of Tamoxifen.  Since I put a comment up on my Facebook page, I have already had one woman who is a friend and fellow survivor say that she just got switched by CVS this month too and is having the same issues as I am.

So I am guessing CVS has a deal going with Mylan.  Well my proescription plan wants me to just use a generic, so I want to use the generic that doesn’t make me nuts like this!

Here is what NIH says about the Teva generic:

DESCRIPTION

Tamoxifen citrate tablets USP, a nonsteroidal antiestrogen, are for oral administration. Each tablet contains 10 mg or 20 mg tamoxifen (equivalent to 15.2 mg or 30.4 mg, respectively, of tamoxifen citrate).

Each tablet contains the following inactive ingredients: croscarmellose sodium, hypromellose, lactose (monohydrate), magnesium stearate, polyethylene glycol 400, povidone, corn starch, and titanium dioxide.

Chemically, tamoxifen is the trans-isomer of a triphenylethylene derivative. The chemical name is (Z)2-[4-(1,2-diphenyl-1-butenyl)phenoxy]- N,N-dimethylethanamine 2-hydroxy-1,2,3- propanetricarboxylate (1:1). The structural formula, empirical formula, and molecular weight are as follows:

C32H37NO8      M.W. 563.62

Tamoxifen citrate has a pKa’ of 8.85, the equilibrium solubility in water at 37°C is 0.5 mg/mL and in 0.02 N HCl at 37°C, it is 0.2 mg/mL.

Here is what NIH says about the Mylan generic:

DESCRIPTION

Tamoxifen Citrate Tablets USP, a non-steroidal antiestrogen, are for oral administration. Tamoxifen citrate tablets are available as:

10 mg Tablets. Each tablet contains 15.2 mg of tamoxifen citrate which is equivalent to 10 mg of tamoxifen.

20 mg Tablets. Each tablet contains 30.4 mg of tamoxifen citrate which is equivalent to 20 mg of tamoxifen.

Each tablet contains the following inactive ingredients: anhydrous lactose, colloidal silicon dioxide, crospovidone, magnesium stearate, microcrystalline cellulose and sodium lauryl sulfate.

Chemically, tamoxifen is the trans isomer of a triphenylethylene derivative. The chemical name is (Z)2-[4-(1,2-diphenyl-1-butenyl) phenoxy]-N, N-dimethylethanamine 2-hydroxy-1,2,3- propanetricarboxylate (1:1). The structural and molecular formulas are:

Tamoxifen citrate has a molecular weight of 563.62, the pKa’ is 8.85, the equilibrium solubility in water at 37°C is 0.5 mg/mL and in 0.02 N HCl at 37°C, it is 0.2 mg/mL.

Anyway, fellow pals of the tale of the breast?  Have you been switched recently to a different generic of Tamoxifen, especially by CVS?  If you were on Teva’s generic Tamoxifen   and have been switched to Mylan’s generic Tamoxifen  and have noticed increased sleeping issues, hot flashes, and night sweats, maybe we are all onto something.

I definitely think I am as this is discussed on Breastcancer.org:

May 31, 2009 10:54 AM gidget01wrote:

I actually had your situation…. I had been on the TEVA manufactured tamoxifen for 9 months and had no problems.  When my prescription plan changed, the pharmacy filled it with the Mylan generic. All of a sudden I started experiencing hot flashes which I had not had previously.  I thought it was odd because the active ingredients in both TEVA and Mylan are both identical, just the inactive are different.  I asked the pharmacy at the next refill if I could switch back to TEVA. They did and presto the hot flashes disappeared.  Strange but true…

Mylan has been under investigation by FDA in the past – in 2009   .  So it’s entirely possible their form of Tamoxifen is really crappy and should be off the market. Mylan had FDA warning on stuff in October 2011 and something in 2012 in January. In March 2012, they agreed to pay $7 million in a drug pricing deal in California. As far as drug pricing they had a similar issue it seems in Idaho in January.  Mylan CEOs seem to earn a lot and change up, too.  They are located in part close enough to Pittsburgh (Canonsburg ,PA), so the papers up there follow the company nicely.

Tomorrow is a very big day for me…it will get the separate post it deserves.  A year ago tomorrow I had my surgery.  A year ago tomorrow my tumor was removed with clean margins and nodes.

And today I made a new friend, a previvor who lives five miles or less from me.

Posted in Uncategorized | Tagged , , , , , , , , | 34 Comments

nominate this blog for a blue ribbon blogger award with country living magazine

Yes…I feel like entering a blog contest. Want to help your favorite neighborhood blogger?

Then follow this link :

https://www.surveymonkey.com/s/blog-nominator2012

….and if you see the worthiness, please consider entering  ihavebreastcancerblog   in Country Living Magazine’s 2012 Blue Ribbon Blogger Awards!

Winners will be featured in their December/January 2013 issue and will also attend a luncheon in their honor in New York City on November 13, 2012.
Nominations are open from May 15, 2012 until July 29, 2012. Please only nominate once.

Read more: Blue Ribbon Blogger Awards – 2012 Blog Awards – Country Living.

Come on now….throw a gal a solid!

Thanks for considering ihavebreastcancerblog for this honor!

Posted in Uncategorized | Tagged , , , , | 3 Comments

Thoughts From The Pink Underbelly (in the last six months)

I *love* this post and am re-posting this morning.  What my blogging Texan at Pink Underbelly said is sooo true.  So while not side-stepping the blog challenge, I will not be adding much, as ironically you have been getting a bit of this in some of my recent posts.

Thus far in my recovery only a handful of days out from my cancerversary, I have been blessed.  I am lucky and I am deeply appreciative of that.

But yet….in the still of a moment, the dark of night, you know as a survivor that our days on earth are limited and we are forever living with the specter of the big C like it or not….indeed “gone but not forgotten”.

As for who have I been? Wow, several women rolled into one.  The determined one – pushing myself through the surgery and radiation.  The tired one who ran out of steam post treatment.  The one with an awakened sense of self who realized money or no money, her job was a toxic wasteland and resigned.

Then there is the step mother in training learning to speak 12. The domestic goddess and wife in training reveling in that role for the first time.  There is also the seeker who seeks life’s next new opportunities and decided to carpe diem. The economy is crappy, so you know what?  In addition to sending out resumes, I am looking at what I can do with my own two hands.  (Which is actually taking the advice of a friend who told me to put this out there years ago.)

Then, interestingly enough, there is just the woman I was long ago before my sweet man and before a bad relationship which was the wrong relationship.  That woman is exploring life again.  However, with that comes the realization that with my new life, like it or not, people are going to fall off my life train – I am indeed different while being the same, and my life is very different and so is how my time is spent.  I have my own family unit for the first time.

So pinkunderbelly and jelebelle, I do not know if that answers it sufficiently or if I have done pinkunderbelly’s beautifully sewn together words justice, but there we have it…. I guess post breast cancer I am a new gal/old gal; a little bit country, a little bit rock and roll. And since this journey began I have met some amazing people.

I am just me….and grateful to be here to respond to the inspiration of pinkunderbelly.

Pax my lovelies, pax.

 

pinkunderbelly's avatarThe Pink Underbelly

Never one to resist a challenge, I happily undertook Jelebelle’s blog prompt this week, which was inspired by Renn’s blog prompt last week. Jelebelle took Renn’s idea and ran with it, challenging us to “post a photo or self portrait or other form of visual art … of yourself that describes who you have been within the last six months.”

Hmmmm. Interesting.

I’m especially intrigued by the “who you have been within the last six months” part. Some days I feel a little Sybil-ish, with many different versions of me. There’s the warrior girl who pummeled breast cancer, the tough-lovin’-but soft-on-the-inside mama, the relentless chaser of the next level of strength in the gym, the hard-core-run-down-every-single-ball tennis chick, the at-home mom who respects the commitment to domesticity while being bored silly by it, the bookworm who can’t dive into the latest good read until the kitchen is spotless, the…

View original post 744 more words

Posted in Uncategorized | Tagged , , , , , , | 1 Comment

transitions

It is hard to believe that in just a handful of days it will be June 1st and I will be a year out cancer free.  I am looking forward to that first official cancerversary.

Life continues to transition and already since I have moved, it’s a bit out of sight out of mind with some of the people who were fairly regularly in my life.   But I knew that would happen.  People get busy and go on with their lives.  And I am not around the corner any longer so to speak.

As part of that transition, I am also finding I am hearing less from some of the people who call or called the ex-factor family and some others in my life.   Part of that is I am sure on me because I have been like Alice down the rabbit hole in another world packing, unpacking, starting again.  And I am sorry for that. 

But I do not think that is so unusual, is it?  I never wanted to be one of those women who disappeared when they had a new relationship, but maybe I landed there by accident.  I have been nesting, yes, and I am sorry…but on the other hand I am also not sorry.  Life is so much better for me than it was, and it is not like I am not appreciative of those who got me through, but I find myself adjusting and savoring at the same time. And I think after the past couple of years I earned some nesting/savoring time.

So now I am coming up for air, and people will either understand…or not.  I have come to the conclusion, to an extent it’s on them and beyond my control.   You know who you are, and I am sorry, o.k.?

Saw some friends from high school this past weekend when a friend was honored with an honorary doctorate in Philadelphia at Holy Family College.  That friend is Robb Armstrong, who is known to most people as the cartoonist behind the nationally syndicated strip, Jump Start. But to me? He’s one of my favorite people from high school.  And his wife Crystal is equally awesome.  After that, I went to a BBQ hosted by some people I have met since I began my transition to Chester County.  It was an awesome weekend.

Forgot to mention that a few weeks ago I went with my sweet man to his high school reunion.  It was held at the loveliest of houses and I saw some people from his class I was very fond of.  But the party was very different from my class’s reunion.

When my class gets together it is always a happy jumble of spouses, significant others, kids, and even people from other classes we just like and teachers.  My class is the casual, wear jeans and hang bunch.   My sweet man’s class was dressed to impress and a lot of the ladies (and gentlemen) looked terrific….but it seems a lot of them also came solo.

When I first got there, I swear some people (not the hostess who is very nice)  had this look on their face of “What is she doing here?  Is she crashing?”  It was pretty funny.  Then there was the whole oh-you-two-are-together thing like happened in reverse at my reunion a year ago.  Then there was the person who asked me if he was good in bed, because (they said), there is nothing worse than bad sex. A definite OMG moment and I am hardly a prude, but I was definitely at a loss for words when asked that question.  The person meant no harm, but it just was one of those moments.   Boy did my face turn red. It was actually in the end, pretty funny.

Then there was the woman whom I always thought I was friendly with who was rather rude to me.  I realize she had a lot of guests as she was one of the people on the reunion committee, but it was like it was an effort to say hello to me.  Face it, when people look down their nose at you, you know it.  But at reunions you find that, and whatever, I was pleasant.  I learned long ago that you can’t be responsible when someone is just being a little bit miserable.   Just like you can’t help but be amused by the women who knew exactly who you were but who looked right at you and through you.

But we don’t know with any of these people what their life has been like.   I mean look at mine?  My whole breast cancer experience could have left me a very negative person.  I am human, I have those traits.  In the end I feel sorry for those people who can’t relax and enjoy seeing old classmates, that it has to be more of a high school to middle-aged popularity contest and who has done what with their life and who makes how much money.

And now there is the continual recognizing of fellow survivors.  It is like once you have been touched by breast cancer, you recognize others who have.  It is really weird. Met another survivor last week.  A remarkable woman.

So here I am, almost a year later.  In a few days I will be exactly a year later.

What a long strange trip it has been.  Thank you to all who have been my support.  I do love all of you, and again, if I haven’t been attentive enough, I am sorry.  Adjusting to a new life, although very positive and very happy, does require some adjustment.

Looking forward to more almost cancerversaries and the end of hot flashes from Tamoxifen.  Yes, the Tamoxifen flashing has been a real bear the past couple of weeks.

 

 

Posted in Uncategorized | Tagged , , , | 1 Comment

carla's avatarchestercountyramblings

What many of my faithful readers of chestercountyramblings may not know is the crazy road that led me here.  This time last year, I was awaiting my surgery to remove a lump – yes, I had that thing all women fear when they get a mammogram: breast cancer.  Hormone driven, invasive lobular to be precise.

But for the grace of God and an amazing friends and family support system, I have come through just fine just about a year later.  I did seven weeks of radiation, am on a drug called Tamoxifen for another four years and a few months, but I am alive. And let me tell you, sometimes in the quiet of my Chester County mornings when it is just me, the birds and a gentle morning breeze I am a little overwhelmed by my good fortune.

Needless to say, having the big C even on  a relatively small-scale is…

View original post 680 more words

Posted in Uncategorized | 2 Comments

life keeps on trucking

This weekend we went to my sweet man’s high school reunion – we are the same age, a year apart. I saw many people I had really enjoyed in high school from his class and couldn’t help but do a compare/contrast. Not so much of the people, but of me. 

After all, it was this same time last year as I got ready for my own reunion that I got the call on my diagnosis. What a difference a year makes.

June 1st marks a year since my surgery, a major cancerversary.  In spite of a bout of breast cancer, I am in such a better place.  Truly, some days I can’t help but shake my head in awe.

I also thought of the woman I grew up with who went to grade and high school with me this weekend.  This should have been Joanna’s 30th reunion.  I saw some of her close pals this weekend, and I know they were missing her.

As I adjust to my new life with my sweet man, I am truly grateful for what in fact amounts to a second chance at life.    The trappings, in the end, don’t matter.  What matters is how you feel; the people in your life around you.

This weekend I also had the chance to reconnect with an old childhood friend.   I had not seen her in easily 30 years.  I can’t even articulate how awesome it was to just hang out and catch up.

Life keeps trucking on people.  And that, is a very good thing.

There is only one success, to be able to spend your life in your own way.

~ Christopher Morley

Posted in Uncategorized | Tagged , | 2 Comments

some men are a wee bit clueless: tales of academia vs. cancer continue

So…unless you have been living under a rock, you know what is irking my Tamoxifen-laden brain this week is the whole deal with the woman named Elizabeth Furey with a rare form of  Hodgkin’s who wanted to walk with her class on graduation from a graduate degree program at Chestnut Hill College in Philadelphia.  She was not asking for any special dispensation on her remaining credits which should be completed this summer.  She just wants to walk with the rest of her class while she is strong enough to do so. A/K/A a compassionate exception to an existing policy.

Anyway, the issue created a flurry of public sentiment (in Elizabeth’s favor) and a couple of news articles, and a couple of posts from yours truly, a breast cancer survivor blogger.

Myself personally, I have had a back and forth conversation with the President of the College, Sister Carol Jean Vale, SSJ.  Truthfully, we have had a very pleasant conversation and polite conversation back and forth.  We will probably have to agree to disagree here and there, but I will give her credit for responding to me.   She doesn’t know me from Adam’s house cat, to her I am a faceless, probably nearly nameless blogger – and to a lot of people bloggers are a little more scary than reporters.

So.  I have heard from yet another person at Chestnut Hill College.  A Kenneth J. Soprano, as in:

Kenneth J. Soprano, Ph.D.

Vice President for Academic Affairs/Dean of the Faculty

Office Location:  St. Joseph Hall, Third Floor, Room 80

Office Phone:  215.248.7022 E-Mail:  sopranok@chc.edu

He sent me an e-mail.  Not personalized in the least.  As if I were some sort of fly to be buzzed off, truth be told.   Kind of little woman-ish. Not only that, but the e-mail he sent was just a forward of a school e-mail.  So maybe it is the Tamoxifen messing with my moods (I have been flashing and sweating like a house on fire the past week), but this just set my teeth on edge.  I am guessing he is not the college’s Goodwill Ambassador?

So here is his e-mail, and below it my reply:

From: “Soprano, Kenneth J., Ph.D” <SopranoK@chc.edu>
Date: Fri, 4 May 2012 21:04:45 +0000
Subject: RE: Do you have no compassion?
A Message from the President,
Chestnut Hill College requires students to complete their requirements for graduation before they can participate in the graduation ceremony.  This is a policy grounded in respect for the integrity of the degree process, and in fairness for those students who have completed their degree requirements.
In March, Rebekah E. Furey asked the College to make an exception to the graduation policy in light of her medical circumstances and allow her the opportunity to participate at graduation. We carefully considered her request, but in the end the College decided against allowing her to participate in the 2012 graduation ceremony.  Our decision was not the result of rigid adherence to the policy, as some have suggested, but rather based on respect for the degree process and those who had invested the time and hard work to successfully complete their requirements.
Our decision was neither easy nor popular, and the ensuing controversy gave us cause to reconsider.  To all who know her and the special circumstances of her struggle, Ms. Furey is an inspiration whose courage and dedication should be recognized.  We agree, and we welcome Ms. Furey to participate in the graduation ceremony scheduled for May 12, 2012.
We continue to believe that the College’s graduation policy is fair and appropriate, and it will remain in effect.  As it has in the past, however, the College administration will continue to consider special exceptions to the policy as individual circumstances may warrant.
Carol Jean Vale, SSJ, Ph.D.
President
Chestnut Hill College
Chestnut Hill College…celebrating 85 years of tradition and risk
Kenneth J. Soprano, Ph.D.
Vice President for Academic Affairs and
Dean of the Faculty
Professor of Biology
Chestnut Hill College
9601 Germantown Avenue
Philadelphia, PA 19118
Phone:  215-248-7022

 

My reply:

Do you think that forwarding someone else’s words suffices as a response? Or is acceptable?

I do not.

Out of all the players involved, I now feel I have the least amount of respect for you. Truthfully the way you have responded, which to an extent makes me feel as if you have more respect for potted plants then women. Well sir, that makes you a bit of a dick.

Of course I wonder if this is how you got to your exalted academic position? By merely pushing papers/e-mails around?

I realize that you find people like myself to be both an inconvenience and an annoyance.

I will assume by your lack of a personal response and use of someone else’s words that you have been afflicted with some horrible malady that we all should pray for you?

Ok then. May you never be a woman affected by cancer.

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

saving face: chestnut hill college changes mind on cancer patient

3:08 P.M. UPDATE:

In a message dated 5/4/2012 3:04:11 P.M. Eastern Daylight Time, cvale@chc.edu writes:

Dear Carla,

Thank you for getting back to me.  I wish I could say something that would help you understand the position we have taken.  In the past, depending upon the situation, the nature of the illness, and the medical information we were given, we have made exceptions.  You don’t know about them because they never reached the press.  You can interpret our current decision as bowing to public pressure, and, in a sense, it was; however, what you do not know is that even after our original refusal, before any news of the situation became public, we continued to look for ways to permit her to participate and still to respect the policy we have established.

This policy may seem harsh, but in reality it draws a clear line between who can and cannot graduate.  Over the decades, students have offered every reason imaginable to be able to graduate when they had not completed their requirements.  When exceptions were to be made because of mitigating circumstances, we made them.  It must also be said that the policy also serves as an impetus for students to complete their programs in a timely manner.  College education is costly, the more quickly a student graduates and gets into the work force, the better it is for them.  We are going to maintain the policy, but I can promise you that we will make exceptions to it when it is necessary that a student be recognized in a timely manner.  We continue to be blessed with “wonderfully, loving and compassionate educators.”  You would only have to come to campus to know this is still true.

Carla,  I admire your honesty and for caring enough to speak hard truths.  Thank you for sharing your thoughts with me.  I will pray for your full and complete recovery from breast cancer.

God’s blessings,

 Sister Carol Jean Vale

2:50 P.M. UPDATE:

I have had a couple of e-mails:

First from Sister Carol Jean Vale, CHC President:

In a message dated 5/4/2012 11:41:29 A.M. Eastern Daylight Time, cvale@chc.edu writes:

Please see today’s Daily News. We have invited her to participate in Graduation and have her named called as she walks across the stage. Further, we will recognize and honor her for her courageous persistence to obtain her degree. Thank you for your concern.
reconciling those memories meet the CHC of today.

Schools, even Catholic ones, have to grow to survive in today’s world.  You will not grow, nor will you prosper long-term if you do not learn to adapt your policies and meet people in the middle.
As I said in my post if you had also put forth a statement you were changing policy to avoid such situations in the future, I would probably not remain as critical.  But you have not. And you should.
To err is human, to forgive divine.  I can forgive people for being short-sighted if I feel that their hearts are ultimately in the right place.  If you value my concern, and the concern and perception of others and grow your policies to be more proactive, forgiveness shall be yours.
But as a breast cancer survivor who looked death in the face for the first time a year ago, I can say with a clear heart your school has some work to do. You have a wonderful history and many fine traditions, but that will not survive if more things like this situation come to light.
Thank you for taking the time to respond to me.

Yesterday, I wrote about Chestnut Hill College and their genuinely un-Christian behavior towards cancer patient Elizabeth Furey.

Apparently they have had a change of heart.  After the public outcry this time, they changed their mind and will let her walk with her class.

I thought about editing my existing post, but since  they never even had the courtesy to acknowledge, let alone reply to my written inquiry about their actions as a breast cancer survivor and daughter of an alumnus, I decided no, God gave me a voice for a reason and the original post will stand.

I do not believe for one hot second that the reason Chestnut Hill changed their mind had anything to do with faculty and students, but more with the  public perception and outcry.  I know many breast cancer survivors who wrote to the school when I posted all the e-mail addresses.  (And I believe the e-mail to the college president is cvale@chc.edu .  Their PR hack is  spigelmyerk@chc.edu , the Director of Planned Giving’s e-mail is shevlandm@chc.edu, and the Media Relations Director can be reached at MixonL@chc.edu.)

Chestnut Hill College couldn’t fight the public relations disaster they created on this one, so they reneged on their earlier position.  And it wasn’t how they were being perceived on the inside, but the outside that did it.  Knowing that, I don’t know if I was Elizabeth Furey if I would walk.  After all, they obviously still did not come to a decision for the right reasons.  In my humble opinion, they are not doing this for the right reasons, but to try to save face.

My original post received a comment from someone using a pseudonym who asserts this school has many issues it needs to deal with.  Well, are we surprised?  As a Catholic, I may still have my faith, but I am a realist when it comes to the issues in the Philadelphia region with things Catholic.  Take as another example, the whole pedophile priest/sexual abuse issues currently being vetted in the court system .

One thing I have not written about here on this blog is the pedophile priest who was accused more than once and was defrocked and put back into my old neighborhood for years.  A neighborhood full of small children.  This former priest pled guilty recently to sex abuse charges and is in jail. And oh yes, for all those years he was in this neighborhood he owned an apartment building he inherited from his mother that often had families with small children and it was across from bus stop for the school district.

So sorry to go off on a tangent, and no Chestnut Hill College had nothing to do with the sex abuse scandal currently running through the court system, but they are still accountable for other examples of reprehensible behavior and that includes telling a cancer patient they would not make an exception for her to walk with her graduating class….until public pressure and a hue and cry they could not control or contain happened.

So Chestnut Hill College, yes you changed your mind.  But not because you really wanted to.  This issue may be this college’s Waterloo.  Messing with cancer patients generally brings bad mojo down.  If Chestnut Hill had announced that they were not only making an exception, reversing a decision, AND changing previous policies I might feel differently.  But these actions are meant to save face, not truly do the right thing in God’s eyes and the eyes of the public.

Polaneczky: A college’s change of heart

Ronnie Polaneczky, Daily News Columnist Philadelphia Daily News

EmailRonnie Polaneczky

             ELIZABETH Furey has a will of steel, as anyone knows who has watched her battle cancer these past six years.

On Thursday, her will was only strengthened when she learned that Chestnut Hill College will let her participate in commencement ceremonies May 12.

Surprisingly, she’s not sure if she’ll accept the offer.

“I so dearly appreciate and am grateful that the administration at Chestnut Hill is providing an exception for me to walk at commencement ceremonies,” she told me after she got the good news.

“However, I am struggling with whether I should walk. It seems like I should not be the exception but that the policy should be overturned completely. I don’t want students who come after me ….to suffer from the same inflexibility.”….Furey, 28, is three credits shy of her master’s degree in clinical and counseling psychology. She will finish them in July and wanted to participate in Chestnut Hill’s commencement. But the college turned her down, citing its policy forbidding anyone to walk until all their credits are completed.

Furey, though, has a rare, deadly and unpredictable form of Hodgkin’s lymphoma — a blood cancer — and fears it may prevent her from attending next year’s commencement. So she wanted to walk this year, while she could. Not just in recognition of her academic accomplishment but in honor of three friends and fellow Hodgkin’s patients — Eric, Anne and Adrienne — who didn’t live to complete their own master’s degrees.

But Chestnut Hill wouldn’t budge when Furey asked administrators to let her walk.

When my column about Furey hit print Thursday, reader reaction was intense. But not as intense, apparently, as the reaction Chestnut Hill got from students, faculty and outsiders who advocated for her.

As a result of the public outcry, “We had a change of heart,” says college spokeswoman Katheen Spigelmyer.

“We decided to make a special exception because [Furey] is a special case,” she says. “This was never about not recognizing her accomplishment. It was about not appearing to give a degree to someone who hadn’t earned it.

God don’t like ugly, Chestnut Hill College.  Learn from the mistakes of the Ardchdiocese of Philadelphia.  Truth will out every time.  Every time.

There is a comment on philly.com from Elizabeth Furey I am going to post as the last word on this:

Posted 6:03 AM, 05/04/2012

Wullie’s Wife is exactly on point.  This was not completely considered a ‘win’ in every single university in Philadelphia, I would have been walking without having to fight and battle administration; however, CHC policy differs.  The point of working with the press was to bring to light they a)rejection of my appeal/request (without the desire to walk), just showing awareness of what has unfolded and b) to create a catalyst of change for the school so many others who follow in 2012’s footsteps have the same opportunity to walk whether they are sick or healthy.
These were the goals at hand, this was the purpose.  To create awareness. To create change, and reveal an arbitrary policy that a chronic cancer patient had to fight tooth and nail, only after tons of press and social media shamed CHC enough to even consider walking.
CHC has left a bitter, bitter taste in my mouth.  And although I am appreciative of the opportunity, I still struggle with the disingeniune offer at hand.  If the offer had been months ago, or before the press, if the compassion and flexibility of CHC was revealed in those moments, I would be dancing across the stage.  But the damage unfortunately has been done, and this is not as clear cut as it was, once before.
Thank you for those who supported this article, and me through this time.
b.

B.Elizabeth
Posted in Uncategorized | Tagged , , , , , , , , | 1 Comment

shame on chestnut hill college – no compassion for cancer patient

File under God don’t like ugly:

Posted: Thu, May. 3, 2012, 3:00 AM  College rigid on cancer patient’s request

Ronnie Polaneczky, Daily News Columnist Philadelphia Daily News

Maybe not enough administrators at Chestnut Hill College know what it’s like to fight cancer.

If they did, how could they deny a student named B. Elizabeth Furey?

In July, Furey, 28, will finish the final three credits required for her master’s degree in clinical and counseling psychology. She had hoped the school would allow her to hear her name called as she strode across the graduation stage on May 12, to the cheers of her family and friends.

However, Chestnut Hill has a policy that no student may cross the stage until his or her courses are complete. So Furey isn’t permitted to walk until May 2013.

The problem is, Furey is sick with a rare form of Hodgkin’s lymphoma, a blood cancer. There’s a chance that, this time next year, she will be too ill to participate in graduation. And, although she won’t dwell on it, there’s also a chance she won’t be here at all.

“We just don’t know,” says Furey, who grew up in Doylestown and was working as a schoolteacher in Florida when she was diagnosed in 2006. She’s now back in Doylestown, where she counsels victims of violence.

“I try to live as though everything will be OK. But in reality, it’s an unknown.”

For about 85 percent of people with Hodgkin’s, the cancer is curable. Sadly, Furey falls into the 15 percent for whom the disease is recurrent. Since her diagnosis, she’s had many setbacks. After the last one, in 2010, her parents were advised to prepare her “for a good death.”…..

Chestnut Hill College accepted 12 of the master’s credits that Furey had earned in Cambridge, then another 12 when she proved to be a stellar student. In the last two semesters, Furey completed clinical work that takes most students three semesters to finish. She wanted to make as much progress as possible while she was feeling well.

“The image of different milestones keeps me going,” she says. “This past year, I would picture myself walking across that stage at graduation and hearing my name called. I would picture my family cheering. It got me through some very hard days.”

In January, Furey learned of Chestnut Hill’s stringent graduation policy, which is different from the policies of many other colleges…..Furey and oncologist O’Connor wrote to Chestnut Hill’s dean of academic affairs, Kenneth Soprano, explaining the unpredictability of Furey’s cancer and requesting flexibility….But the school wouldn’t budge.

I am finding this Catholic College has questionable Christianity.   Not that we should be surprised at their unfeeling hypocrisy.

Chestnut Hill College is also my mother’s alma mater.

Well the Chestnut Hill College of today seems to have more oops they did it again moments than Britney Spears.  In the not too distant past there was the issue of the firing of the gay professor .  Yes a beloved prof was canned for being gay. Now at the time, I wrote the school because I thought that was horrible, naturally they never responded.

But now my mother’s alma mater has done something offensive which hits close to the cancer feelings in me.  It involves a woman with a rare form of Hodgkin’s lymphoma.  She has a few more credits left, and will finish in July.  But she wants to walk with her class at traditional graduation now.  You know, while she is feeling well enough to do that?  Not get her diploma, just walk.  So her friends and family can celebrate her accomplishments.

But this is not to be, apparently.

Chestnut Hill said “no”.    Who knows if this brave woman named Elizabeth Furey will be well enough or alive NEXT May when Chestnut Hill says she can walk.   We all know once cancer touches you, every day is a gift.

Chestnut Hill College should change their policy.  Other schools in the area, including other Catholic institutions, allow people to walk if they have just a couple of credits left.

Even if Chestnut Hill College did not want to change their policy, they could on compassionate grounds make a one-time exception.

Shame on Chestnut Hill.  If you or a loved one has ever been touched by cancer, take a minute to contact the college to ask them to reconsider.  It would be nice for Elizabeth Furey to be able to do this.  And it would cost the school nothing.  What jerks they are being.

Kathleen M. Spigelmyer
Director of Communications
Chestnut Hill College
9601 Germantown Avenue
Philadelphia, PA 19118
Phone: 215.248.7025
FAX:    215.248.7196

spigelmyerk@chc.edu

Kenneth J. Soprano, Ph.D.

Vice President for Academic Affairs/Dean of the Faculty
Office Location:  St. Joseph Hall, Third Floor, Room 80
Office Phone:  215.248.7022
E-Mail:  sopranok@chc.edu

School of Graduate Studies Phone: 215.248.7018

Email: mcadams@chc.edu

valec@chc.edu

Carol Jean Vale, SSJ, Ph.D.

President
Office Location:  St. Joseph Hall, Second Floor
Office Phone:215.248.7021

Mary Darrah, SSJ, M.A.

Assistant to the President for Mission and Ministry
Office Location:  St. Joseph Hall, Third Floor
Office Phone:215.248.7031 E-Mail:  darrahm@chc.edu

mgalball@chc.edu

Galbally, Mary Ann Assistant to the Dean215.753.3606

 

Posted in Uncategorized | Tagged , , , , , , , | 2 Comments

vote now! (check out my photos in the DVRPC photo contest!)

vote now! (check out my photos in the DVRPC photo contest!).

Posted in Uncategorized | Tagged | Leave a comment