warrior queen, this post is for you

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I am part of this amazing group of women known collectively as The Pink Moon Lovelies. I am also a chapter in the book The Pink Moon Lovelies: Empowering Stories of Survival.

One of our members, our warrior queen Barbie Ritzco is fighting for her life right now. So I am taking a moment to give her a shout out! She is chapter 1 in the book if you own it.

As my friend Nicki Boscia Durlester said today:

For those if you who haven’t had the opportunity to read Barbie Ritzco’s story first up in our book, The Pink Moon Lovelies: Empowering Stories of Survival, please take a moment to read it now. Barbie is a career United States Marine who put her life on the line for ours when she deployed to Afghanistan knowing she had a lump in her breast. I have never known any like her. She is in a class by herself. I ask you all to keep her in your loving thoughts and prayers.

Sending love to her, Barbie Ritzco, this post is for you!

Reprinted with love and prayers, here is Barbie’s story:

Barbie Ritzco
BRCA2 Breast Cancer Survivor, 39

Now this is a story all about how my life got twist-turned inside out,
I’d like to take a minute, just sit right there,
I’ll tell you how I become the prince of a town called Bel Air…
OOPS!!! Wrong Story!!!

I always knew I would be the one to get breast cancer in my family. I have always been the lucky one. Winning bullshit here and there. Nothing significant but considered lucky nonetheless. I never even had boobs until I was in my late 20s, after I gave birth to my son. They were a size D. They never got any smaller; they just kind of deflated like old helium balloons. I had stretch marks all over them. I had my nipple pierced too. I have no idea why. I was in Ontario, Canada assisting with an air show and it seemed like a good idea at the time. I do spontaneous stupid things. I think I have a T-shirt or bumper sticker that says that…anyway, now all that is left of my boobs are the stretch marks. My surgeon did a skin sparing procedure. What a nice guy. Thanks doc for saving my stretch marks! He wanted to leave as much skin as he could for reconstruction since I was so skinny.

Flashback! Sorry for the flash-forward. For all that don’t know my background I will just drop a few small details so this story has a chance of making sense. I am 37 years old (Italian, Polish, Russian). I am a GySgt in the US Marines. I have been serving for over 17 years. Iraq, Afghanistan, Germany, Spain, Italy, Ireland, Hawaii, Japan, Romania, etc, been there, got the shot glass. So there I was in a community shower with eight other women in the field while participating in desert operations preparing to deploy to Afghanistan. I noticed a small lump while I was washing. It was about the size of a gumball. Small in the real world. Big in the cancer world. Too busy to put any real thought into it, I just continued on with my regular day-to-day work schedule. 12 hours on and 12 hours off. One hot meal a day. Sleeping on a cot in a hut in the desert at triple digits. Eventually in a few months when things calmed down, I told my Flight Surgeon that I had a lump. He did what all good Docs do and referred me to someone else to
have it checked out. I cancelled the appointment several times due to hectic work situations and sleep deprivation. We were scheduled to deploy in mid November 2010. I once again cancelled the appointment; actually I think I just forgot about it. I told my Doc that the lump wasn’t going anywhere. It would still be there when I got back. I wasn’t going to let a lumpy boob stop me from deploying. Hell no! I went through too much to get to this point to not deploy with my Marines and my Squadron.

I soon deployed to Afghanistan…. me, my M16 service rifle, 50 rounds, a Kevlar, Flak jacket, gas mask, and unbeknownst to anyone else…my lump. I really didn’t think much of it. There is no history of breast cancer in my family, well except for my first cousin Linda who was diagnosed at 30, if you want to call that history. I closely monitored it and when I noticed it became slightly larger after 30 days in country, I had the Doc check it out. He said it felt like a cyst and he would check it again in 30 more days. Sounded good to me. A few weeks passed and it seemed to have grown again. It had taken control of my nipple. Inverted nipple…. not good. I am not going to get into too many details about my deployment. I just want everyone to understand what my situation was at the time. I was in Khandahar, the world’s deadliest place. I was working non-stop to support a flight schedule of FA-18 fighter jets that were constantly dropping bombs on the ground and saving grunt’s lives (3/5 Darkhorse Marines). In less than 45 days, I sent 23 Marines home in boxes. Every night and several times a day, our base was under attack by rockets. We spent hours on end in bunkers waiting for a sign that all was clear. I was responsible for the lives of the ten Marines under me. We hoped all our training would work. The situation was extremely stressful. I think that is why my lump doubled in size in such a short time. Every night taking a shower I would dread washing myself because I knew that lump was there. I would cry in the shower every single time. I knew what it was.
There was no mammogram equipment at the hospital in Khandahar. It is basically a stop the bleeding point for troops before they med-evac them to Landstuhl, Germany. I was told to pack a bag because I would be gone for a few days. I had no idea that I would not be returning at this point. I was briefed that if the worst-case scenario were breast cancer then they would send me home. I piled onto a C-130 medical flight headed to Germany. It took about two days to get there. We had to make several stops along the way to pick up combat wounded troops. I finally arrived in Germany at the hospital and was immediately escorted to see a general surgeon. He examined me and we assumed the worst. It looked horrible. A giant lump, an inverted nipple, and swollen lymph nodes…I was a walking pamphlet for breast cancer. He performed a core needle biopsy. The results wouldn’t be available for a few days. I was lucky enough to have arrived on a holiday weekend. It was February 11th, 2011. Valentine’s Day would be on Monday. Great! I was able to squeeze in the mammogram and an ultrasound before everyone went home for the day. That was good news. I sat in the barracks for a few days with the rest of the Wounded Warriors. Some would not be returning to the combat zone. We all played the waiting game. My results came back on February 23rd, 2011. I already knew what it was. I was just awaiting confirmation. The Chief of Surgery sat down with me and told me that it was pretty much what we thought…breast cancer. I had already prepared myself for this moment while sitting alone in a room for a week. I never told anyone I had left Afghanistan. I didn’t want to worry my family. Now that I knew the results, I had some phone calls to make. I guess that was the hardest part up until then. I called my mom, my husband, my sisters, Brenda and Tammy, and then my dad. I told my mom that I was flying into D.C. and they would start whatever treatment was necessary at Walter Reed in Bethesda MD.

It has been a long year for me. I tried to remember all the details of this journey. One thing I will never forget is the hurt and pain I felt in knowing that I was not going to return to my Marine family. I trained for months with them for this. We had gone through so much. I felt ripped off that I would not be able to complete my deployment with them. I was forced to abandon them. I hoped that they would be strong. This would be the defining moment of my leadership and training. If I had trained them right, they would be successful without my physical presence. I would be useless as a leader and a complete failure if they did not succeed. In the end, they all returned home safely. Mission accomplished!

All alone, I arrived in Bethesda MD. My mom arrived the next day. She drove down from PA. It was a Friday. On Monday, I was scheduled for the million tests and scans that we all know too well. Shuffled for weeks between radiology, cardiology, oncology, surgery, social workers, physical therapists…did I miss any -ologies or -ists? All the while, it seemed as if every person in that hospital had either seen my boobs or palpated them in some way. They just loved poking at my lymph nodes. What was that all about? With all that said, I will make this as short as I can. I was diagnosed at Stage IIIB. They could feel about three swollen lymph nodes. After my surgery, he said 11 out of 11 nodes were cancerous. Only a few of them were affected by chemo. Some hadn’t responded at all. But that was the drill. My lump measured 8 cm by 9 cm when chemotherapy started on March 24th, 2011. Eight cycles of fun. Bilateral mastectomy followed on August 12th, 2011. I removed both not due to the BRCA but because I did not want one real boob and one fake boob. Radiation for six weeks ended on November 22, 2011.

My next step in this was to have my ovaries removed on January 18, 2012. Reconstruction is not anywhere in my future. I have two more years until I can retire from the Marines. Right now, I can’t see myself having another surgery that I consider optional and unnecessary for me. Sure boobs would be great but for whom. I have never seen things more clearly. After being stripped of everything on my body, my life has never made more sense than it does now. I felt more complete being bald and boobless than I ever had before. In my case, it isn’t a matter of you don’t miss it until it’s gone. I do not miss my boobs and I did not miss my hair. It was more like a heavy weight or a burden that was finally removed from my body. I am free! Free of things that most women worry about their whole life! My self-esteem and confidence has only been boosted during all of this. I have never felt so liberated. I will continue to do whatever I want no matter how uncomfortable people around me feel! I will not dress up or cover up or boob up for anyone!

I have to end this now. I rambled enough. I think I have motivated myself into starting a blog or a comic strip or maybe even a short story. I mean, I am no Nicki Boscia Durlester! But maybe one day, if I work hard, I can be!

**In some parts of my story, I added more details than others. I guess that is just the way I see it. Most already know all the horrible things that happen during chemo, surgery and radiation. Not many know what I went through before and during my diagnosis. I just felt like that was a very important part of my life and story. Names have been changed to protect the innocent. This document is unclassified. Objects in the mirror are closer than they appear. Avoid alcoholic beverages. Apply prior to sun exposure. Wash, rinse and repeat if necessary. I was just seeing if you were still paying attention.

I looked at my kingdom,
I was finally there,
to sit on my throne as the prince of Bel Air.

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along came a message on a rainy day

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Along came a message to this blog that I opened this morning. The message said:

Hi! I was just diagnosed a couple weeks ago (am age 34), and have found your blog super helpful (especially the post on how to tell people). I’m going to try and follow in your footsteps and document my journey in case it can help more people in the future. If you like my blog, please add me to your blogroll! Thanks! http://www.youngandcancerous.com

I have been at this blogging thing a while now, and I am still touched to the point of tears every time I get a note like this.

When I get a note like this, I am also instantly transplanted back to that April afternoon in 2011 when the room swam slightly in a circle and I got my diagnosis. Every breast cancer is different, but we all can agree that when you first get the diagnosis the room spins and you feel like someone knocked the breath out of you.

The woman who wrote to me is named Lisa. She is 34 years old. She literally just got her diagnosis. She has started a blog called Young and Cancerous: Look Out Breast Cancer I’m Dangerous

In her first post she says:

I want you to know that I have been diagnosed with breast cancer. I am 34 years old. My prognosis is very, very good. My type of cancer and what we know about my potential stage of cancer at this time all point to the fact that this is all very, very treatable and that I will have a long and healthy life.

I am sharing this news with you because, honestly, it will just be so much more difficult to keep it private. I thought about waiting to share this news until my full treatment plan is known, but there are so many steps in this process and I just can’t foresee the “right” time. So I’m sharing everything I know, and I’m sharing it now. As I’ve come to understand my diagnosis and sought to learn about both the science behind the treatment options and the personal experiences of others, one medium that has helped me greatly are the personal blogs of other patients who have walked this path before me. I’m going to work hard to document my journey, and through this blog I hope to keep you updated and provide a record that could assist others who may someday be in my position. It will also be therapeutic for me to write.

A form I recently filled out during a surgical consult. It felt so strange to circle “breast cancer.”

While this news was shocking, it was only to an extent. This news did not come entirely as a surprise to me because of my strong hereditary and familial risk. My mother survived breast cancer (diagnosed at age 55; in remission the past 9 years). My grandmother did not survive it. She was diagnosed in her early 30s, then diagnosed again with metastasized breast cancer in her late 30s. The disease killed her by age 43.

She goes on to talk about her cancer and what she wants from friends and loved ones. She is taking this bulls**t called breast cancer by the horns and wants positivity around her and negativity kicked to the curb.

Brava!

A lot of us know the journey she has ahead, and selfishly I can honestly say I am damn glad to be past all that.

Lisa’s message came to me on a day that can only be described as a bit off. I had a night of light to little sleep (it’s what happens occasionally when you are in official medically diagnosed menopause – no more estrogen means you just don’t sleep the way you used to) and my joints are all achy. Some days it is just hard to have to deal with the aftermath of mutant ninja pink breast cancer turtles having had a go at your body and all that comes after to remain cancer free. (And yes, I know the alternative would suck more!)

O.K. I can feel you all tsk, tsking me. Yes, we are beautifully alive and have survived, but some days you look in the mirror and shake your head. We all have these moments as women even without breast cancer if we are honest, so we might as well be honest.

A message like I received this morning is a reaffirmation of why I write this blog in particular. And it is such a nice message to receive on a dreary and rainy day.

Welcome to the club, Lisa. I wish I wasn’t welcoming you to it truthfully, but you go girl! We’re rooting for you! And thank you for being such a positive reminder of why I do this and how grateful I am to be alive and kicking and healthy and cancer free and doing this!

Life is a gift, and among those gifts are the people we meet on the journey.

Anyway, give her blog a read! It’s on WordPress like me and again it is called Young and Cancerous

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just thinking….about everything

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My brain woke up a little bit busy, so here I am again….writing.

I am three years breast cancer free as of June 1st. I am on Tamoxifen three years as of October. Because I had the full hysterectomy in late March I am now considered post-menopausal which means the efficacy of Tamoxifen for me has changed. Aromatese Inhibitors (Arimidex, Femera, Aromasin) are my future because well face it, my body has changed again and these are the drug family most effective for me for the next two years.

I have another friend who is literally on the same path, my friend Melinda. We have been talking about which Aromatase Inhibitor will be chosen by each of our oncologists for us. The side effects this time are daunting for me although I won’t fight taking the drug. Curtain number one, curtain number two, or curtain number three?

Yes for two more years I can suck it up because the alternative, a potential for recurrence, is highly distasteful to me. It’s just my body has been through so much change since this started with my initial breast cancer diagnosis. And I think before I experienced the joys (sarcasm) of Tamoxifen I was less trepidatious about the drugs. But now I do get anxious once in a while and I think I have to own that to work through it, which is why I am writing this today.

I read things written by people who have just come through surgery and treatment in the form of radiation and chemotherapy who say things like they are cured and cancer-free. While that all may be true in the end,and you don’t want to burst their bubble, next comes staying that way and unfortunately it all isn’t positive thinking. It’s that and a lot of other stuff.

My body has changed as much as I am forever changed by this disease. For the most part I am grateful and positive, but some days I am tired and frustrated. The weight gain issues with breast cancer drugs while manageable are enough some days to send you towards having an eating disorder. For example, because I was never able to have children I never experienced food cravings…until now. I am glad my endocrinologist who was also a survivor warned me.

Then there is the random occasional joint pain, sleeplessness, hot flashes, and occasional inner emotional turmoil. I apologize, I am not trying to scare the crap out of people new to this journey called breast cancer because the truth is everything is manageable and some never experience side effects. This is just me, venting. As with everything in life there are good days and bad days.

Big picture is I am alive and healthy and cancer-free. I look at this as five years of inconvenience and then I can have more of me back.

I think my other issue is me psychologically adjusting to menopause. That and being sick of seeing commercials for erectile dysfunction and vaginal dryness. Have you noticed there are more commercials about drugs for these things than tampons?

The Today Show on NBC did a series all week on being 50. Some of it was interesting and a lot of it was irritating because I felt bad for one of the news team who was a constant focus, Hoda Kotb (who is also a survivor).

Being 50 is still a weird concept to me because I remember being 16, 20, and so on. I have as a matter of fact in the past few months discovered a writer who is my age, a survivor and as funny as hell and she makes sense….or she does to me.

Her name is Diane Mapes, and she also contributed to this being 50 thing on the Today Show’s website. This essay was awesome, here’s an excerpt:

This Is 50 Not your Mrs. Robinson fantasy: The brutal truth of dating after 50 By Diane MapesTODAY contributorAug. 5, 2014 at 9:55 AM ET

….The truth is by the time you turn 50, things do start to happen. And by things, I mean gravity starts to go all “Game of Thrones” on your body. Everything begins to drop, except your blood pressure and cholesterol, and you suddenly understand why Nora Ephron felt bad about her neck….I feel bad about a lot of things, including the fact that I sometimes feel bad about my body. We’re supposed to love our bodies, embrace our “battle scars.” But I’ve been at war the last three years and I freely admit to having mixed feelings about the woman staring back at me in the mirror. I got hit with breast cancer in the spring of 2011. Lost both the girls to surgery, all my body hair to chemo and by the time I finished radiation, my chest looked like I’d had a run-in with one of Khaleesi’s dragons. The burns eventually faded and most of my hair grew back but the breasts were another matter. Rebuilding those takes time. And, as they say, “work.” Right now I’m in the middle of reconstruction and my chest looks and feels like I’m wearing a coconut bra under my skin.

So I can honestly tell you I am glad I didn’t have to deal with dating and breast cancer at the same time. And I enjoy reading her perspective because we started on the whole circus of breast cancer around the same time and she writes in an amazingly positive and humerous manner. But what she says about her body and the changes she has gone through, I totally get.

Diane Mapes is having reconstruction, and a couple of friends who had partial mastectomies like me are also going to have reconstruction. I have opted not to do this. Mostly because the idea of another surgery is wholly unappealing. Part of it is also because to me fake boobs, well…..always look fake.

When you have had breast cancer you (I hate to say it) start to look at the boobs of others. You learn to spot a fellow survivor at twenty paces and wonder if the fake boobs are a problem when you get a mammogram. For that I actually asked my technician and she said it can be very uncomfortable for women with fake boobs because basically the implant gets sort of shoved as much aside as possible to get the mammography images. To me that sounds dreadful. I hate it enough that post-surgery the mammogram kind of hurts when they are doing my left breast.

I still remember when I was just through my surgery all the helpful and unsolicited plastic surgeon recommendations I received from non-survivors and non-medical professionals. I wasn’t even out of the surgery bandages and people were telling me about boob jobs and plastic surgeons. It was almost upsetting and my rational mind always knew they were only trying to be helpful. But sometimes, inside my head, I was silently saying “shut up already!”

I look in the mirror and yes I am lopsided. But I am alive, and I just don’t see myself with fake boobs. I figure I am already luckier than most because my breast surgeon was an artist and I truly have very little in the way of residual scarring. The only scar you see is a tiny line under my left arm where they took the lymph node out.

Just because I am opting not to have reconstruction it doesn’t mean that I am judging those who have or are going to have e surgery. It’s just not for me. Although I do envy them in one sense as they will have a much easier time finding bras. Finding a bra that is comfortable is a pain in the ass.

I will tell you I discovered a bra I wish I had known about when I was post surgery and going through radiation because I could have worn it. It is seamless and wireless, and doesn’t give you a uni-boob like a sports bra. It’s called an Ahh Bra by Rhonda Shear. I bought the one with NO lace, just plain, and it’s comfortable. It has been since before my surgery that I found a bra comfortable.

Before I go, I have two articles from BreastCancer.org I wish to point out, which are relevant to what I was writing about in part today:

Electroacupuncture Helps Ease Fatigue, Anxiety, and Depression in Women Taking Aromatase
Breastcancer.org
Published on August 1, 2014 at 6:46 AM

Choosing Not to Have Reconstruction — Are You the Only One? Breastcancer.org
By Barbara Kriss on July 31st, 2014
Categories: Treatment & Side Effects

To read more of what Diane Mapes writes check out her blog Single Shot Seattle a lot of her breast cancer specific writing on her blog can be found under the “breast cancer crap” category which as a category name cracks me up.

I also need to mention that this summer I have had a lot of women coming to me with questions about being a patient going through breast cancer treatment. Every experience is different, but my best advice is to be your own advocate is key. You have to NOT be afraid to open your mouth and ask questions. We are not pink robots, ladies. Also listen to your doctors and don’t try to be Wonder Woman….and use your radiation creams!

I think I have finally written my over-thinking brain out of my system for the day. After all my whining I will tell you I remain positive and I know I am one of the lucky ones. My sweet man is an amazing forever life partner and my step son is very awesome in his own right.

For all the inconveniences and body changes the thing called breast cancer has caused, as I have said before, in a weird way it has also been good for me and freed me. I know I am lucky and have an awesome life (and garden!) but having breast cancer has ultimately told me that being positive and doing the work to be that way is indeed worth it.

Yes ladies, I am 50, hear me roar.

Thanks for stopping by!

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betwixt and between 2014

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Today was my next 6 month check up with my oncologist. I am fine, no recurrence thank God, but I am at a breast cancer treatment crossroads again.

I had a full hysterectomy in March. That combined with my third year Tamoxifen anniversary means I now fall into the post menopausal breast cancer survivor category. Which means my meds are probably going to change. To aromatase inhibitors .

This leaves me feeling anxious and of mixed emotions. I am finally at a place where I feel adjusted to Tamoxifen and the side effects but getting spayed makes it a game changer.

My oncologist says he thinks the aromatase inhibitors have a better efficacy rate for women like me. That translates to quite simply an even better chance to reduce the chance of a breast cancer recurrence.

On the negative side, other side effects. The one that concerns me the most is joint and bone pain and a reduction of bone density is possible. I already have random joint pain .

Breastcancer.org has this to say:

Aromatase inhibitors stop the production of estrogen in postmenopausal women. Aromatase inhibitors work by blocking the enzyme aromatase, which turns the hormone androgen into small amounts of estrogen in the body. This means that less estrogen is available to stimulate the growth of hormone-receptor-positive breast cancer cells.

Aromatase inhibitors can’t stop the ovaries from making estrogen, so aromatase inhibitors only work in postmenopausal women.

There are three aromatase inhibitors:

Arimidex (chemical name: anastrozole)
Aromasin (chemical name: exemestane)
Femara (chemical name: letrozole)

Each is a pill, usually taken once a day. All three are available as generic medicines…switching to an aromatase inhibitor after taking tamoxifen for 2 to 3 years (for a total of 5 years of hormonal therapy) offers more benefits than 5 years of tamoxifen….Aromatase inhibitors tend to cause fewer serious side effects than tamoxifen, such as blood clots, stroke, and endometrial cancer. But aromatase inhibitors can cause more heart problems, more bone loss (osteoporosis), and more broken bones than tamoxifen, at least for the first few years of treatment….you may want to ask your doctor about having a bone density test to see if a bone strengthening medicine might be necessary while you’re taking the aromatase inhibitor.

The most common side effects of aromatase inhibitors are joint stiffness or joint pain….Arimidex and Femara have similar chemical structures, while Aromasin has a different structure.

So while I am uneasy, I am going to do it.

I will have a bone density scan in the next few weeks. Then we will chart a course of treatment that may or may not include osteoporosis medicine, depending on what the bone scan says.

What it would be would be two years of aromatase inhibitors versus seven more years of Tamoxifen – yes for a total of ten. My oncologist had changed his mind after further research. I initially thought it would only be five years of Tamoxifen, because that was how we left it after my last visit. But my oncologist does a lot of research, so he had changed his opinion.

I do feel betwixt and between, basically because these drugs do scare the crap out of me. But the alternative scares me more.

I am really tired after today because I think I am a little overwhelmed. I will be O.k. once I wrap my head around this.

Thanks for stopping by.

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how not to treat breast cancer patients and survivors

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In 2012 I wrote a post about Lankenau Hospital and Main Line Health’s screwed up business practices. when it came to billing.

Today I am writing again.

This is what I sent to Lankenau today.

If I had to do it all over again, as much as I love Dr. Marisa Weiss I would have chosen to go elsewhere because of your sucky business practices when it comes to patient billing.

When I began as a patient three years ago I filled out reams of paperwork. And I kept asking for bills as week after week of radiation treatment went by. I was told not to worry I would get billed. Only I never got any bills. But I kept asking and they kept giving me the same answer.

More than a year later I find out because of my then mail man that you all were mailing invoices to my dead father’s FORMER address. A property my parents had not owned in over a decade at that point, and I might add an address I never provided to you because I wasn’t a patient of yours before. I always use Penn Medicine.

So I called and I went through rigmarole and finally ended up on a payment plan. I was paying you until April 25, 2014 when my invoices stopped coming.

I made two attempts by telephone to get my invoices straightened out at that point, but stopped because I was recovering from another surgery.

Today I get in the mail an envelope from a bill collector. You decided to sell my debt off for collection even though I was paying and had reached out to say “where are my monthly invoices?”

You people are disorganized jerks and I will tell everyone to start avoid being treated by anything Main Line Health related.

If this is how you treat women who have had breast cancer, who needs this crap?

Basically Lankenau can suck it. I have acted in good faith all along. And all along all the problems tag back to their screw ups in billing and “customer service”.

Having breast cancer is hard enough and dealing with everything after you have had surgery and treatment and start meds can be enough of a pain in the ass without dealing with healthcare systems and their way of doing business which only adds to patient stress levels a lot of the time.

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how to tell people you have breast cancer

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I am asked fairly often how I told people I had breast cancer. The simple answer is I just told people.

I just had the inquiry come to me from a breast cancer charity I really respect, Living Beyond Breast Cancer, so I thought I would just write a quick post.

How to tell people you have breast cancer?

Just tell people calmly and in a forthright manner. It’s unpleasant for others to hear and it’s always startling, but the calmer you are about it and the more matter-of-fact the easier it is for your loved ones and friends to deal with.

And remember it’s happening to you, not anyone else. Do not make the mistake of taking other people’s reactions on as your personal burden. That sounds a little cold, but that is not how I intend it. It’s just that when you are dealing with this disease called breast cancer, you have enough on your plate without being responsible for how others react to it.

There is no magic wand for anything having to do with breast cancer, so you have to manage things as best you can, putting yourself first. It’s another part of being your own advocate.

Recently I have learned of more women I know being diagnosed with breast cancer and going through treatment. I’d say welcome to the club, but it’s not a club any woman (or man) chooses. But how you approach the whole thing makes all the difference.

Be positive. Be direct. Be yourself.

Every day I know I am one of the lucky ones. And I am thankful. But for the Grace of God couldn’t be more true.

I am writing this post on a Thursday, so I am thinking as I close, that we need to change up tired hashtags like #TBT or #ThrowBackThursday and instead switch it up to something else. I am thinking #ThankfulThursday.

Have a great evening dear readers!

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more life lessons

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“Life gets mighty precious when there’s less of it to waste”
― Bonnie Raitt

Ain’t that the truth. I have been living with some news about a person I honestly love for a couple of days, and well now is the time to write about it.

I have gotten to an age that a lot of my contemporaries as well as myself have lost at least one parent. A few months ago we buried one of my best friend’s mothers and she was truly a remarkable woman whom I do indeed miss.

There are a few more of these amazing women who are mothers of childhood friends that I still keep in touch with. And as an adult, they are not only my friends’ mothers but special to me as individuals. They are mom extensions for lack of a better term. Most of them are friends of my mother’s as well.

Two that come to mind in particular are both widows like my mother, and when we were growing up they were then as couples great friends of my parents. We all spent a lot of time together, and as a result of the friendships between the parents, the then children (us) became friends too. I have always thought it very cool that I have the friendship of the parents as well as their children.

So I just found out that one of these mom extensions hasn’t been feeling well. In fact, she has been given a difficult diagnosis and has an unexpected and perhaps slightly uncertain journey ahead of her. Leukemia is the long and short of it.

When I first got the news, it hit me hard. Much like my own mother, this is a woman who never spent much time being sick or near a hospital except to visit other people.

As I processed what was happening, I was flooded with a lot of awesome memories I have of her through out my growing up years.

An immediate thing that comes to mind when thinking about this woman is her wit. This woman is one of the funniest people I have ever met. And she has not only an infectious laugh, but when she smiles her whole face and eyes light up. She is one of those very cool people you can giggle with about really silly stuff.

This woman is also one of the most inspirational and positive people you will ever meet. She always sees the good in others and she has a deep faith you just don’t see as much today. She’s not prissy or pious when I say she has great faith, she just has this goodness and belief in God that I guarantee can warm the most jaded soul.

I spoke with her today and as always it was just one of those great conversations you wish you could have with more people. She has known me since I was pretty much hatched, so she and I can laugh about stuff going back decades.

Today we also touched on serious things and that she has some possibly hard days ahead of her. But even discussing the most serious of things, her humor and amazing positive attitude shines right through.

I am not sure this post is tracking as I am thinking about so many things at once. Life situations like this really make you stop and think. It makes you value what is important and shed the rest.

But for the grace of God go all of us.

Have a good evening.

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three years

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Today marks my third cancerversary. I am three years breast cancer free!!!!

Yay!!!!

This time three years ago I was in recovery after a successful surgery.

I am one of the lucky ones and I feel blessed that I have attained three years already without a recurrence.

I have learned in these past three years there are no guarantees and we have to just live our lives as best as we can. I am learning to love myself just the way I am and to appreciate even more those loved ones around me. I am blessed with amazing friends and family.

I value greatly the readers of this blog and it wonderful to have you on my journey and I enjoy reading the breast cancer blogs many of you write as well.

I will note that I am experiencing something new as I enter this third year cancer free, and amazingly it is cyber-bullying at the hands of a couple of very sad people who used to be a part of my life. And one of those people was even part of my support system through breast cancer. These aren’t kids, these are people considerably older than I so how sad is that?

Life is a precious gift, and it is truly disappointing that anyone would waste their precious days on earth swirling in anger and self-loathing .  But I didn’t cause it, so it is on them to wallow in their own poison. I won’t and don’t. I pray people like this find peace.

As I enter fully this third year being cancer free, I believe even more in the philosophy of Karma. I completely believe it is true that the good you put out there comes back to you. I also believe in the reverse, so why not live your life in a positive manner?

Thank you one and all for sharing this journey with me and continue to look positively into the future.

Sending all my readers love and blessings. It is a beautiful day, I hope you can go out and enjoy the sunshine!

Remember, you are never too old, to love, to smile, to give a compliment, to think positively. Be ageless today. Let your inner light shine today.
~Eckhart Tolle

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the next phase

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Fifty.

How old that seemed when I was a kid, and now it is just a beginning.

I am a bundle of emotion today I find. It has been quite a journey getting here.

Well, that is what life is, right? It ebbs and flows, changes and evolves.

I am really fortunate and really blessed to have the friends and family I have. I find myself remembering other birthdays I have had. From when I was very little to a few years ago. A veritable potpourri of memories. Kind of cool.

I love where I am now.

In life, we grow and change, and we come full circle. I believe I have come full circle. My late grandmother had a saying – you always come back to what you are from.

How true.

I am where I am supposed to be and who I am supposed to be with. I am lucky enough share my life and birthday with the most amazing of men. I love and I am loved.

Life has many twists and turns and bends in the road. What you thought would be at fifteen or sixteen is completely different by the time you hit your twenties. Then there are the thirties and the forties. Every decade is different, but if you are lucky you have awesome people in your life who see you through every decade.

I have been lucky that way. I have amazing people in my life, and a lot have been there since I was the littlest of girls.

As we go through life people enter and leave our lives. You don’t get to be fifty without that happening. It’s ok and it is part of the cycle of life.

Being fifty is like standing on the edge of something new. You have everything that came before, and now you find yourself looking forward to what lies ahead.

Three years ago and a few weeks before my then birthday, I was diagnosed with breast cancer. It made that birthday a little bittersweet and even a little scary. But dealing with that made me really value my life and those in it.

With age comes acceptance. Not that I consider myself old, because I don’t . You learn you can’t be responsible for the actions of others, only your own. You learn you can’t be responsible for the actions of others, only your own. You learn (sometimes with difficulty) that things are beyond your control and that you have to believe in God or whatever higher power you choose that it will come out all right in the end.

Today I dedicate my post to my friends and family. You are the ones who lift me up and I want you to know how much you all mean to me. Thank you for being on this journey with me. Cheers to the next phase of life and thank you so much for making my life special.

Cheers to the future!

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the secret fear and loathing of women

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This morning I am going to touch a dark and serious topic. Something a lot of women, breast cancer or not, struggle with at some point in their lives or several points in their lives ….if they are honest.

Self-body image.

Ah huh yes, that topic. But I need to talk about it for me. If you don’t want to hear about it, turn away now.

Societally, we put a lot of pressure on ourselves as women to look good. Look at our secret television show habits like the Real Housewives franchises on Bravo, for example . Those women are all pinched, prodded, propped up. With some of them the plastic surgery is very clever, some of them look quite augmented pronounced. But not much is real.

As a breast cancer survivor there are moments more so than others at times that I am conscious of self-body image. After all, I look in the mirror at anything fitted and well….I am lopsided because part of the rack is gone. Cancer ate it.

Then I am upset with myself for having that thought because I am alive. But it happens.

Like many other women approaching 50 who are aging as nature intended I look in the mirror and wonder where I have gone. Yet, I am there, I am just older.

Most of the time I am o.k. with being me. But I woke up today just on the verge of tears. So I decided to deal with it and here we are.

I saw my mother yesterday. I had not seen her since either her surgery or mine. I took care dressing because she’s my mother and she can be critical. She is a woman who has always placed importance on how women look and how they dress.

I was so glad to see her. She is finally doing better and well, I love her. She is my mother. But I wasn’t even there twenty minutes and she zeroed in on how I looked. With special emphasis on my weight. I have to be honest she is obsessed with weight and appearance of women. A woman can be the biggest duplicitous bitch who ever walked the earth, but if she looks good? She’s in.

I grew up with cautionary tales of women who “let themselves go.” I think the first time I went to Weight Watchers I was maybe 14 or 15. She was trying to help, I am not angry for her doing that, but it never addressed the issue. I grew up with a younger sister who has always had a drop dead gorgeous figure. I have spent a lot of my life trying to measure up and feeling the ugly duckling. And I know I am not unattractive. But the little self image poisoning voices get kind of loud at times.

If I am honest I think when I first started to really worry about this was about 7th grade. I was at least a year younger than any of my classmates because I had been put ahead. The drawback of being the smart and young in the class other than being a smart and younger girl is everyone is developing ahead of you. It’s hard.

Growing up on the Main Line of Philadelphia was pressure for a girl. The emphasis always on the right clothes, the right look, the right body type. I went to high school with a lot of awesome girls who also happened to be drop dead beautiful. Tall, blonde, leggy, WASPY, and small waisted. I have a vowel on the end of my name, so when I started to develop I was well…curvy. And dark haired.

As I reached my twenties I caved to the whole “certain” image of it all. I lost so much weight it is hard to recognize myself when I look back at photos. But for a while I was cadaver-thin in a bikini. Those were my sort of “it girl” years. But the irony is the scale said low and the dress sizes were low and I still obsessed with how I looked.

As I hit my thirties and forties I began to really struggle with my weight. A lot of that struggle when I hit thirty five and I was put on progestin to control the bleeding of extremely heavy periods and cysts and fibroids. Every month I was on progestin I gained weight. Every month I was on progestin I had pitty edema in my ankles and feet. I had to worry about blood pressure for the first time in my life.

Me on progestin was not pretty and not emotionally fun. It was hard, no matter what I gave off outwardly.

Of course when I came off the progestin is when I was diagnosed with a hormone positive breast cancer, invasive lobular breast cancer.

Breast cancer has really made me face body issues. At times I am actually better with the feeling attractive of it all, but now almost three years into Tamoxifen post-breast cancer I still fight this. I mean let us get real, the hormones are getting sucked out of my body. My skin is more dry, so is my hair. But on the positive side my blood pressure has gone down and I have not experienced any edema at all since I stopped taking progestin.

And one of the things they don’t talk about with Tamoxifen enough is the fact you get food cravings. I was warned about this from my endocrinologist before I started taking the drug, but never having ever had a child I never experienced food cravings that some women experience during pregnancy.

Do not misunderstand me, I am not going to be one of those women who is going to take themselves off of their breast cancer meds, I will see the five years through. But I have to be honest about where I struggle. And where I struggle in addition to hot flashes and not being able to sleep as well is with the emotional side of this drug and the damn food cravings.

So I feel some days like I have this double whammy of Tamoxifen and just being a woman turning fifty. I am not struggling like it is so awful I can’t get out of bed but I have my moments of fear and loathing for lack of a better description.

But come on, if you are a woman, let’s get real: even without extraneous things there are just days you feel well, not pretty and well forget about sexy. You just feel dull.

Men really don’t understand how big a deal it is and how nice it feels when they tell women they look nice. And the thing I think with that is it is easier to remember who you are when you see yourself reflected in love in the eyes of another.

Circling back to yesterday, what bummed me out is I went out feeling better than I had in over a month. Then all of a sudden I was that young girl again. The one that was always secretly bummed she was never thin enough or fashionable enough in her mother’s eyes (or maybe just her own?). And that hurts and I recognize it.

I am not angry at my mother, I don’t love her any less. It just is, and part of it is a reflection of her generation of women. Hers was the true era of a lot of women were just pretty baubles on their husbands arms no matter what they care to admit (which is often not much). But I need to finally start to reject all of that. I am not talking about burning my bra and giving up fabulous shoes, I am just talking about being finally able to accept myself on my terms.

It is up to us to love ourselves as women as we age. I am turning fifty in a couple of weeks. I am not turning twenty. And the truth is I don’t want to be twenty again. So I have some work to do. But what are we if not an evolution in progress?

So ends my thoughts for the day. This was hard to write about. But you fear the shadows less when you face them, don’t you?

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