One of the techs where I am being treated rocks out loud as I am just that raw and sore and miserable that I asked if they had anything I could put on as soon as I was done radiation – and he got me a sample of Biafine that did the trick. Wish I had known Biafine could be sampled – at $100 a tube it is really pricey and insurance refuses to cover it and when you contact the manufacturer to ask them why they don’t do something to make it affordable (and oh yeah it is made by Ortho Dermatologics a division of Ortho-McNeil-Janssen Pharmaceuticals – so if you are from Philadelphia and know any McNeils think of this), they send you back some hooey that is pharmaceutical company double talk which is almost as annoying as insurance company double talk.
My escort today was continuing the theme of Gladwyne was one of my Karens…and we giggled our way through.
Deep breath…almost there…I need a couple of days off from everything I think…and not just the weekend.
Now that I am almost finished I will tell you who my radiation oncologist is – she’s very cool and kind of famous for her charitable contributions to breast cancer. I have had the privilege of being treated by Dr. Marisa Weiss founder of www.BreastCancer.org
As this part of treatment draws to a close, I have to say once again I am humbled by the love of my friends, family, and sweet man – you helped me find my strength.
A thousand simple thank yous. I am blessed to have you in my life.
Another interesting thing to note – via twitter and a secret habit of watching Real Housewives of New York City, I noticed that one of the wifey types was developing a line of undergarments – Jill Zarin (Her website is www.jillzarin.com – WordPress is still wonky and I have been having issues for a couple of days entering hyperlinks – so much for preformatted HTML code, right?).
One of the things most lacking in this dealing with breast cancer process are TRULY comfortable and attractive as well as soft and supporting shaped camisoles (NO underwires)- which I now understand why they are important as red and raw as I am . If you go to a custom lingerie maker like Gie Gie in Paoli,PA you can get things, but the reality is they are incredibly expensive and out of touch with reality as far as what most women can afford as they pay for treatment.
I have hated feeling like a sagging old mountain woman ( sort of like Chloris Leachman’s character in “A Girl Named Sooner” circa 1975). And Gie Gie in Paoli is definitely out of my price range given the research friends did for me. I found one slightly shaped cami at WalMart but it has so much spandex in it that right now it hurts to get into it.
So I sent a tweet to Jill Zarin and followed up with an e-mail. I was impressed she replied to me personally (and was so nice!) — people like to mock reality stars but if they can help get breast cancer patients more comfortable and attractive and affordable undergarments, that is such a positive thing to do with celebrity. Breast cancer hits at the core of each woman’s femininity and I don’t need something with hooker lace and off the pole satin accents, I just want something soft and comfortable that looks and fits nicely….that is AFFORDABLE to all women.
Between that and the tweet from one of my favorite actresses Nia Vardalos, I am happy to see when people use their celebrity for good.
Dog tired and signing off. One of my gals is rescuing me later for a glamour session…I could use it…feel old today.
But tomorrow I am one day closer!!!!